Discussions By Condition: I cannot get a diagnosis.

Lymph Difficulties

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Anonymous
  • August 11, 2008
  • 04:49 AM

Hello! Since January I've had frequent and painful flare-ups of the lymph nodes in the neck, clavicle region, and arms. Since the first bout in January the clavicular and arm nodes have been better. Now, it remains generally in the neck area, the left side in particular. Having seen multiple doctors and having been screened for lymphoma, cat scratch fever, HIV, and having had multiple other tests, it seems no one is really sure what is going on. It all started after I get a set of immunizations to go to Africa on a mission trip this summer.
A surgeon suggested reactive lymph nodes. The infectious disease doctors think it is perhaps sinus related. However, went in while having a flare-up and the doctor said the sinuses looked fine, and I had adnovirus now instead, but initially it was sinuses. These symptoms have been the same for seven months. It seems to be the same thing it was before.
While I've had everywhere around the neck checked over, the actual area where pain exists has not even been x-rayed. Nor has my spleen been looked over. When my sisters came and asked about this, the doctor said he was going to do what he was going to do and he needed to go see another patient. We hadn't kept him for over ten minutes, so that, to me, seemed a bit rude. Plus, we are treating sinuses again, while even when they are healthy, the symptoms persist. I think we are looking at the wrong diagnosis, but it is difficult to express that. I would appreciate any advice anyone could give. Thank you.

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