Discussions By Condition: I cannot get a diagnosis.

Lyme Symptoms, But...

Posted In: I cannot get a diagnosis. 10 Replies
  • Posted By: Anonymous
  • August 8, 2007
  • 08:43 PM

Hi,

Appreciate this great forum!

I'm male, 58, 5'10 185 in good general health

I have a painful neuropathy/parastethsia since 1987, and no cause has yet been discovered.

In June of 1987, I saw a large bullseye rash on my leg. It was strangely painless and itch free. It was pink in the middle and blanched on finger compression. I felt fine for a while, then started noticing strange "muscle twinges" when doing yard raking and such.

In September of 1987, I awoke with a mild headache and fever. The fever was remarkable in that I had never had an unexplained fever before. No sore throat, belly cramps, cough, or anything.

In the following 2 weeks, my life became a nightmare. My muscles began to hurt more on repetitive use. I had painful muscle spasm in my jaws and under my chin and tongue. I began having "glove-and-stocking" parastethsias.

Within a few more days, the parastethsias became painful neuropathy. It was everywhere. Head, face, arms, legs... but I think it was mostly absent on the belly and back.

Went through the medical mill. I guess every test known to science. In about 1988, took a lyme test, negative. Took another about 2 years ago, still negative. Docs are baffled, no meds help, and doc's are wondering if it's all in my head.

My Symptoms:

Neuropathy... very painful tingling, throbbing, gest worse when tired
Painful joints, without swelling, comes and go's over weeks and months
Muscles easily cramp (charlie horse) when I get into awkward positions
Feeling of heart palpitations that mostly do not show on Holter monitor
Easily fatigued
Extreme sleeplessness
Restless legs

My questions are, could 2 Lyme tests have missed it?

If a new Lyme test comes back positive, could treatment ease my neuropathy?

If I'm stuck with it for life, is there any effective medicine for neuropathy?

Many thanks for any replies or advice!

Rob

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