Discussions By Condition: I cannot get a diagnosis.

Low Sugar

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: hallrebecca
  • April 7, 2008
  • 06:14 AM

Help!!! My 4 year old daughter, for a little over a year, has been been getting low sugars. Whenever she gets an infection whither it is an ear infection, bladder infection, somach flu or virus ,and some times we can't find an infection at all. She's okay for a day or two but then out of the blue her blood sugar will drop drastically. She has been as low as a 27 in blood sugar before. It always happens first thing in the morning. Never happens any other time of day. And her ketones in her urines seems to be high. I have taken her to a pediatric metabolism doctor, and a pediatric endrincrologist. She is small for her age. But other then that seems to be reaching all her mile stones. At Seven monthes old she was diganosed with Chronic neutropenia but was cleared of that as of her second birthday. She does have asthma and seems to get sick fairly easily. I was told she has a ketone utlization disorder, but no one knows what that means. She does not have diabetes, but I, do. Also her little brother who is two and has some birth defects seems to be following suit. He was recently in the hospital for a sugar that was a 36. The only thing I know to do is keep a really close eye on her and if she is not feeling good to make sure and give her some pudding or yogert with a tablespoon of cornstarch in it before she goes to bed at night. So it releases sugar through out the night. I also keep an emergency glucagon syringe nearby. But even when she is getting glucose water at the ER or getting food it usually takes a while if not all day for her to get back to her old busy self. I need to find out what this truley is and if anyone has any ideas I would appreciate it.

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