Discussions By Condition: I cannot get a diagnosis.

Looking for Marfan's specialist

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: spanky
  • September 6, 2008
  • 04:36 AM

I have tried using Google to find listings for doctors in my area (Houston) that specialize in treating Marfan's Syndrome, supposedly this is where a lot of research on the disorder takes place but I cannot find any listings. None of the hospitals I have called in and asked were very helpful, either.

I'm aware from my research that if I in fact do have Marfan's (my sister is diagnosed with it, and I have observed many symptoms in myself) - I will probably need a specialist who has worked with Marfan patients otherwise I am screwed.

Please help! Can someone refer me to a specialist or direct me to a listing?

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