Discussions By Condition: I cannot get a diagnosis.

Looking for Lupus People

Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: Lameme1957
  • May 8, 2007
  • 07:49 PM

:confused: Well this is just the first stages of my research for info about Lupus.
I mentioned to my dr that perhaps we should run some more tests to check out if the results would substantiate a lupus diagnosis instead of the usual pat diagnosis for a middle aged female. MENOPAUSE AND STRESS.

Good grief, dont ya think they could have come up with something besides that "catch all" diagnosis.

If you take all of the patients that drs are diagnosing as "stress" related we probably would have a recognized epidemic.

My dr didn't even ask me what symptoms I had that I thought were pointing to Lupus. After my own research I have on several occasions burst into tears realizing that symptoms I had almost twenty years ago were pointing to this disease, not stress like they said. The first being the swelling around the eyes and face and lips. Now all of the symptoms are progressing towards full blown symptoms including the raised, scaly round sores specifically behind my ears, along with the continued chest and breathing pains, severe instant onset of migraines, with extreme and severe muscle and joint pain. I have suffered from severe anemia for a long time. The lower back pain and kidney pain is constant and severe enough to be debilitating. My energy levels are exhausted after only a few hours of any type of activity. To the point that I am physically and mentally and emotionally unable to cope with anything but bedrest and quiet.

I have actually wondered whether I got this from the blood I was given after the birth of my son in 1980. I began to have symtoms of constant unexplained illnesses from that point on. I actually hemorraged 2 weeks post cesearean delivery and then again 1 1/2 weeks later. My assisting ob was atually my father in law at the time, lol. He told me he talked to his colleages and none of them in the 25 years he had practiced had ever had this happen to a patient. Only with vaginal deliveries, and usually immediately after delivery, not weeks later. Go figure. But I can't seem to remember any of these problems prior to that particular time. I never had allergies either till the blood transfusion. Now I am constantly fighting those symptoms too.

I guess what I am looking for here is some feedback regarding this and how to go about pushing forward to get the necessary tests, diagnosis and possible treatment. I don't want to talk to five hundred people who may or may not have any informed opinions, I would rather come here and perhaps find a few people who can communicate with me so I don't feel like some kind of crazy hypochondriac.

I hope to hear from someone with enough info to give me some much needed feedback.

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