Discussions By Condition: I cannot get a diagnosis.

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Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: sugarplum
  • October 8, 2008
  • 04:40 PM

My daughter was found to have hypertension in November 2007, since then through a series of blood tests, urine analysis, Ct scans, ultrasounds,etc it was determined that the left kidney was "likely" causing the hypertension. No diagnosis has been given. She is only 2, has had hypertension since birth. She is on medication to control her hypertension.

On top of that she always had an extended belly. We always knew she was full by checking her stomach, if it was tight, she was full. This has decreased some. She did not start solid food until she was over a year old, she just wouldn't eat it. The docs, (at about 9 months) said she would get hungry (three days later she still didn't want to eat).

She doesn't much enjoy food still, though she has a crazy thirst. It worsened when we put her on the medications for her hypertension. She has an insane amount of water everyday which causes her to have polyuria (increased urination). Her nephrologist says that the medicine shouldn't be causing it. We tested for diabetes...nothing. What do we try next? Any suggestions would be useful.
We were sent to Sick Kids in Toronto and they tried to stent the vessels in her kidneys, but they were to small, so they tried ballooning them open, and the result was nothing new.

A frustrated mom.

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