Discussions By Condition: I cannot get a diagnosis.

Liver cancer?

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: teripat62
  • May 23, 2008
  • 02:12 AM

A leading liver specialist informed us (my husband & I) a couple of months ago that he had liver cancer or so she thought. Her diagonosis was based on, to start with he has Hep C and ten years ago he was involved in a research trial receiving interferon & ribaviran or a placebo. At the time of starting the trial he had a biopsy and his liver was rated a 3plus with four being the worst. Two years later he had another biopsy and it came back as a 1, we were really happy.
Anyway all these years later it was revealed that my husband was one who received the placebo and that the people who received the ribavirin had acheived better outcomes so they started another round of tests as they wanted to offer him the chance to go on the ribavirin.
He has 3monthly LFTs done anyway and though they are high aound 250 -300 for his ALt,(this is alot better than the 1000plus prior to giving up alcohol 12 years ago and having the interferon treatment) they havent really changed a great deal, during all those years not one doctor (GP) commented on his low platelet count they mostly looked at the ALT AST gamma gt etc. So he had an alpha fetaprotein test done and it came back at 74. She then stated that he is unable to have the ribavirin as it will kill him, he cant have a liver biopsy because of the low platelet count, when asked about his 2nd liver biopsy which was a 1 she stated that it was inaccurate, & in her opinion he definitely had cirrohsis and more than likely liver cancer, he had an ultrasound and it had a good result according to the radiolgy report, she wasnt happy with that, he had an endoscopy, he has two mininmal oesphageal varices, and a triphasic Ct which shows no liver lesions although his liver & spleen are enlarged.
We are now unsure what comes next, he isn,t sick and she stated no you wont be until the end well this is just freaking us both out there has been no really bad results and though we want to be certain there is no cancer we are just confused about her doom & gloom prognosis. Can anyone out there help please? :confused:

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