Discussions By Condition: I cannot get a diagnosis.

leg seizures

Posted In: I cannot get a diagnosis. 6 Replies
  • Posted By: Chazzie
  • July 13, 2009
  • 03:08 AM

I was diagnosed with a meningioma brain tumor in the upper left hemisphere in August 2008 and subsequently had successful brain surgery. However, the residual results were leg seizures in my right leg (starting in the calf, moving to the foot until the the entire leg from toe to thigh are rigid and tingling) which began approximately two months after the surgery. They are not noticeable to the human eye. There is no movement or jumping -- just numbness, tingling and a sensation of the seizure as it moves up the nerve slowly. I was prescribed dilantin after the surgery for preventive measures, however, when these "seizures" began, the dilantin was slowly increased. (I am now at 230 mg. morning/night). The seizures have never been controlled. In February 2009, I began Topamax, 50 mg. morning and night for headaches and burning in right foot as I was also diagnosed with peripheral nerapathy. The seizures have not been completed controlled. They happen sometimes in the afternoon but more often in the evening after I've had a busy or stressful day. They're sporadic. Sometimes once a week, sometimes twice a day, then none for 1-1/2 weeks. Only once has one begun while I was driving, but I had my "aura" which gave me an indication that the seizure was about to start and I stopped driving. Topamax is now at 100 mg. morning/50 mg. at night. When I had a massage, when the foot and calf were massaged, I felt the exact same tingling sensation that I feel when I have these seizures but without having the seizure. Is there an answer to this? Thanks.

Reply Flag this Discussion

6 Replies:

  • You cannot have 'Leg Seizures' although your description of a leg seizure is a good one. Make sure that your doctor knows about this problem and he may want to check to make sure that you are not actually having a seizure when your leg feels like this.Get that ruled out first.If all is OK, then Low Vitamin D and/or Magnesium could be the problem. Get your vitamin D level tested and treated. Normal blood magnesium does not indicate anything as the vast majority of your magnesium is not IN your blood. It's very safe to take supplemental magnesium until the point that you get loose stools in order to see if your 'leg seizures' could just be a symptom of magnesium deficiency.Kerri Knox, RNFunctional Medicine Practitioner
    kerri38846 11 Replies Flag this Response
  • Thank you for the reply. I see my neurologist regularly and she is fully aware of these so-called leg seizures and was the one who continued me on the Dilantin and started me on the Topamax. The neurosurgeon was in agreement that whatever is causing the problems with my right leg has to do with the brain tumor and subsequent surgery as I never had anything like this prior to the surgery. I've had several MRIs but it doesn't seem anyone is able to pinpoint how to correct these tinglings/numbness/leg phantom feelings which last anywhere from 2-10 minutes. I will try the magnesium and Vitamin D. Thanks again.
    Chazzie 3 Replies Flag this Response
  • Be sure that you ask your doc for a Vitamin D Level because if you are truly low in Vitamin D, then the amount that you would likely take on your own to 'take some vitamin d' would likely be not nearly enough.Vitamin D researchers are now recommending between 3500-5000 IU's per day as a MAINTENANCE dose- it takes much more for correction of a deficiency. Lots of people report resolution of numbness and tingling when their vitamin D levels are corrected. Make sure that you get a calcium level at the same time- as it could also be a calcium imbalance. If the calcium is HIGH, that changes the whole strategy with vitamin d!Kerri Knox, RNFunctional Medicine Practitioner
    Anonymous 42,789 Replies Flag this Response
  • Thank you again! I think I should re-title this thread but what to call it I'm not sure. I'll definitely request a vitamin D and calcium level check when they check my dilantin level again. Hopefully, there's really no reason for all of this anti-seizure medicine if what I'm dealing with aren't seizures. At last, there's another possibility! Thank you!
    Chazzie 3 Replies Flag this Response
  • My brain tumor was on the other side of my head as the one where I use the cell phone. The tumor was slow growing -- the surgeon estimated it had been growing for more or less 15-20 years until it started affecting my health, i.e., dizziness, falling, nausea, vomitting, etc. When it was removed, it was larger than a golf ball but less than a tennis ball.
    Chazzie 3 Replies Flag this Response
  • You cannot have 'Leg Seizures' although your description of a leg seizure is a good one. Make sure that your doctor knows about this problem and he may want to check to make sure that you are not actually having a seizure when your leg feels like this.Get that ruled out first.If all is OK, then Low Vitamin D and/or Magnesium could be the problem. Get your vitamin D level tested and treated. Normal blood magnesium does not indicate anything as the vast majority of your magnesium is not IN your blood. It's very safe to take supplemental magnesium until the point that you get loose stools in order to see if your 'leg seizures' could just be a symptom of magnesium deficiency.Kerri Knox, RNFunctional Medicine PractitionerI beg to differ. I've been suffering from diagnosed diagnosed seizures in my right leg for 15 yrs. EEG's MRI's tons of anti-convulsants daily. Occasionally I have grand mal seizures which are terrifying, but generally they are focal seizures. So yes leg seizures are possible
    Anonymous 42,789 Replies
    • September 27, 2012
    • 03:47 AM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.
Advertisement

8 Health Dangers of Depression

Unmanaged depression can take a toll on your physical health.

Best Cough & Cold Meds for Kids

Help your child feel better, faster.

What HIV Positive Women Should Know About Sex

You can have sex after an HIV diagnosis.

Food Choices for Diabetes

What, when and how much you eat affects your blood sugar.

6 Exercises for Multiple Sclerosis

Ease your way into these stretching and strengthening moves,

Advertisement