Discussions By Condition: I cannot get a diagnosis.

Increasing shortness of breath over last 12 mths

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: Craig Waters
  • March 9, 2008
  • 00:31 PM

A brief history of my ongoing saga.
I am long distance runner. March 2007 I was training for my first 100mile trail race in September 2007, I was up to 4 hour runs.
I had been dieting and dropped from 125kg to 92 kg, I was at my fittest ever.
I started to get breathless when I ran up hills and had to walk. It got worse and I was breathless for the 1st hour of a run (I had to run as slow as possible).
Within 2 months the breathlessness persisted for an entire 1 hr run.
THe only good runs I had was when I was running on the beach.
Now to the present. I am breathless walking, I can run for 3 minutes but my pulse stayed at 120 for 30 minutes after.
Specialist findings: abnormal haemoglobin, haem J. Might add to my breathlessness but I have had it since birth and there is nothing that could be done about it.
Bone Marrow biopsy showed autoimmune response, T cell complex level abnormality. Specialist says the levels werent high enough to be a concern.
Respiratory finding: Small airways asthma, inhalers taken for 4 mths, no improvment.
ENT surgeon: signs of damage to upper airway probably caused by oesaphaegeal reflux. Treated with drugs for mths, no improvement.
Cardiac: Stress Echo, Artery Calcification Scan. No heart problem but now have high BP. 170/100 put on drugs.
Mild sleep apnea: CPAP mask started.
What's next? No one will consider Food allergies, eg nutrasweet, dairy.
I am totally lost.

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