Discussions By Condition: I cannot get a diagnosis.

If not dementia then what?

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: stedman
  • March 8, 2007
  • 06:23 PM

Last may my husband was admitted to hospital with a suspected stroke. After several days and much degeneration he was diagnosed with Miller Fisher Syndrome and given immuno globulin. We were told to wait 6 months for recovery. In november when he next saw the neurologist, the doctor said no it is not m/f but a degenerative dementia for which there is no cure. y husband then spent 3 weeks in hospital undergoing more tests. The list of possible causes have been; CJD, Ataxia, fronto teporal dementia, prions, whipples and others I have forgotten. He has been in hospital now for 5 weeks and we are still no nearer a diagnosis.
He cannot speak properly, cannot walk, his movements are stiff and uncoordinated, he has double vision, a persistant cough that seems linked to the swallowing mechanism, he finds it difficault to chew food without biting his mouth, hecannot do anything without assistance, even standing to pee takes 2 people to hold him up, he has no balance, he is agressive and violent towards me but not hospital staff. His memory is generally very good and he consistenly passes the dementia tests. His psychologist has said that he does not have dementia but the neurologist says that he has. They now think it could be the cerebellum or broca's regions of the brain that are affected. It is now nearly 12 months and he is getting frailer and less able to communicate every day.

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