Discussions By Condition: I cannot get a diagnosis.

If all else fails remove the spleen... help!

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: sunnynm
  • May 27, 2008
  • 00:50 AM

I am new to posting but am so confused by doctors that I thought if I shared this, someone might respond with some insight.

I am a Non-hodgkins Lymphoma survivor (8 years :)). I am very grateful. Two recurrances but I am in remission. I am a young 51 yr old female :D.

Over the past three years I have struggled with GI issues. First a bleeding ulcer, then later still being anemic, they discovered esophageal varicese. They diagnosed portal hypertension. After almost 9 months of extensive tests, my GI is stumped (he is a well respected GI). He admits he is stumped. My liver is a keeper (no alchoholism). My spleen is enlarged but has been since I was diagnosed with lymphoma. It still serves me to it's best ability.

My oncologist feels that removing the spleen is not the best option, since it does not guarantee that removal of the spleen will solve the problem. My GI thinks that we should remove the spleen because it is bound to help the pressure on the portal vein.

Is there something I am missing. A little more history, I was taking a very small dose of Ativan to help me sleep for a year and started feeling like my tongue was burnt. Also, when I had intervenous iron, I broke out on my legs in small bumps, it started to spread to my arms but diminished. About that time I stopped the Ativan. Very strange, maybe the Ativan had something to do with the disfunction of the liver/spleen blood flow? I don't know, I have resorted to guess-timating causes/effects for this problem since the doctors aren't sure. I have read somewhere that Ativan taken over a long period of time can cause problems.

My oncologist is a top doctor and his concern (bless him) is to keep me cancer free. So his opinion is keep the spleen.

All the doctor's that have taken extensive tests, including liver biopsies, blood work, dopplers and scans have different opinions. Possibly something rare or genetic but can't put their finger on it.

To remove an organ and hope it works, hmmm this will take some real convincing. I can't find anything on the internet that helps. It is all a mystery to me.

If anyone has any thoughts ~ I appreciate your sharing them with me.


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