Discussions By Condition: I cannot get a diagnosis.

I think my daughter has kawasaki's disease

Posted In: I cannot get a diagnosis. 9 Replies
  • Posted By: AJ1010
  • November 25, 2008
  • 11:52 PM

This is going to be long, sorry.

Last tuesday she was under the weather (she's 5, will be 6 next month). Wednesday she was worse and complaining of her throat and neck hurting, so to the doctor we went. He diagnosed tonsillitis and gave her penicillin. Thursday and Friday her lymph nodes in her neck were huge. They felt like grapes on one side, smaller on the other.

The nodes were better by saturday, but on Sunday I couldn't control her fever and her eyes were terribly bloodshot plus she developed what I assumed was a scarlet fever rash. (she's had little to no appetite this entire time). I took her to the ER, they diagnosed her with scarlet fever, gave us a script for ceftin, sent us home (and told us the red eyes was from such a high fever). I got one dose of the ceftin in on Monday morning, it tasted so bad she refused it on monday night. I bribed and coaxed, got her to take it, she threw it up immediately. Rash seemed mostly gone yesterday, but she said her hands and feet were itchy. I also notice that not only are her eyes bloodshot, but she has big red blood patches that you can only see when she's looking down.

Took her to the oncall doc at our healthcare center today (because her regular doc thought it could wait and I didn't). Did a rapid strep, x-ray, and bloodwork. Rapid strep came back negative, mono negative, pneumonia negative. Gave us a med I know she will take (augmentin) said he couldn't rule out kawasaki when I asked, and told us to go to her regular doc in a few days.

I managed an appointment for tomorrow, thank goodness. But I live in a really small area and feel like he's just going to blow me off when I bring up kawasaki, which he's most likely never seen before.

She has the red eyes, had the swollen lymph nodes, red lips, sore throat, fever, and rapid strep says it's not strep. There is little else that fits like Kawasaki and at this point, I feel like the doctors in this one horse town probably couldn't find their own tush, nevermind make such a tricky diagnosis correctly.

I am usually not one of those moms that freak out, but I know how important early treatment is for this.

Thanks if you got all the way through this.

Reply Flag this Discussion

9 Replies:

Thanks! A moderator will review your post and it will be live within the next 24 hours.