Discussions By Condition: I cannot get a diagnosis.

I have been sick for 3 years HELP Please...

Posted In: I cannot get a diagnosis. 15 Replies
  • Posted By: EastTexasMom
  • June 12, 2007
  • 07:32 PM

28yr old female, symptoms fatigue, fever, migranes, joint pain, severe GERD, diahrea, stomach spasms, painful intercourse (pain for at least an hour after intercourse), my cycles last for 5-7 days every 14 days

I am currently taking aciphex twice a day, zantac as needed, malox daily, relpax as needed, claritin, provera 30mg daily to help with my female issues, lexapro once a day

After the birth of my daughter who is now 3 1/2 I got very sick. I kept telling the doctor how tired I was. At first I was told that I just had a baby that is why I was tired. Then it moved to I must be depressed. So even though I really didn't think I was depressed I started welbutrin. It wasn't a month until things turned strange.
I started getting lumps in my wrists, and all my hand joints began hurting and stiffining. The whites of my eyes turned blood red. I felt pins and needles in my hands and feet. I went to dr to dr. Not one Doctor knew what was wrong so they would refer me on. I had blood work, catscans, xrays, MRIs, eye tests, nerve tests, etc... nothing showed up
By the time I got to the rhumatologist my hands were locked up I could not use them they were so stiff and swollen. His inital evaluation he gave me a steriod shot, oral steriods and told me he thought it was RA. After the labs he ordered he thought it might be Sarcoidosis becasue of a slightly elevated ACE level. I started plaquinil and continuted the steriods. I did this for 8 months.
I felt better after that, I was still tired, but it was managilbe. So I had no idea what had caused this, all I did know was I prayed it would not continue. I got a call from a nuralogist I had saw that my B12 level was low and to take 1000 mg of B12 a day from now on. So I began taking the b12. about 9 months later my reflux started acting up horribly, I had had diahrea for months but the GI dr hasn't a clue. Finally the diahrea gets better and the GI dr has me taking aciphex twice daily with zantac 300mg as needed.
I have had repeated pnmonias and sinus infections all fall and winter, the pulmanologist does not think this is sarcoidosis. He thinks it is reflux causing the infections.
Just last week my joints started up again. My internalist gave me a shot of steriods which has helped. I had a endoscopy yesterday which revealed 4 ulcers in my esophogus and 1 in my stomach, I am currently doing a 48 hour ph probe test (bravo) all the doctors say is something is wrong, but your blood work is all ok! I am sick and I need help! Does anyone know what might be wrong with me?

Reply Flag this Discussion

15 Replies:

Thanks! A moderator will review your post and it will be live within the next 24 hours.