Discussions By Condition: I cannot get a diagnosis.

I've Given up on My Physician

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: melissarose8585
  • May 29, 2008
  • 08:35 PM

I'm a relatively healthy 23 y.o. female, who has never even had to stay in the hospital overnight. No broken bones other than my toes and a finger, and one or two fractures. Just wisdom teeth removal as far as surgery goes. I'm not overweight, my only medications are Mobic, Albuterol, and Prednisone at frequent intervals.

But for years now, I've had problems and my doctor hasn't been able to help me. At around 8 or 9, my doctor noticed some issues with my lymph nodes, but after a few rounds of steroids, I was fine. Some minor swelling every once in a while, but nothing big. Then, when I was 19, it all seemed to start going downhill. I had strep throat, which triggered problems that led my doctors to diagnose me with guttate psoriasis. It took about a year and a half to get that under control, but the doctor has since found nothing that explains my symptoms, and he has started to just tell me "it's your immune system."

My lymph nodes swell constantly, and can be very painful. I have headaches, fatigue, bruising, anemia, joint problems, numbness in parts of my lower arms and fingers, bouts of constipation then diahhrea, irregular and painful periods, pain in my legs, frequent colds, temperature sensitivity (I'm constantly cold, even if it's hot), and increasing amounts of perspiration. I've also developed an anxiety disorder, which we're not sure if it is due to whatever is going on or to other factors.

My doctor has stopped helping me, and another has taken the case. A CT Scan showed that my lymph nodes are swelling abnormally and for no reason, and my white blood cell count is through the roof while I have few red blood cells. It isn't leukemia, which was his first guess. I have to wait until the next real flare, as the symptoms seem to get worse when I get a cold, which happens about four times a year and can keep me down for months at a time. But many of them (symptoms) are constant, and they have been affecting my work and school.

Does anyone have any ideas? He's looking into Hemachromotosis and Hypothyroidism, and we're waiting to get some test done. Until then, I've been classified as having an unknown autoimmune disorder. Help would really be appreciated, as I'm tired of not knowing what's wrong with me.

Reply Flag this Discussion

5 Replies:

Thanks! A moderator will review your post and it will be live within the next 24 hours.