Discussions By Condition: I cannot get a diagnosis.

I'm spending 16-20 hours a day in bed, HELP!

Posted In: I cannot get a diagnosis. 16 Replies
  • Posted By: Anonymous
  • June 30, 2010
  • 11:23 PM

I am desperate for help, my doctor can't seem to figure out what's wrong with me & I don't think anyone understands how severely this is affecting me.

I'm tired all the time. Not sleepy (in fact, I only need about 6-8 hours of sleep a day). It's my body, it's just not functioning, it's hard to move and hard to sustain activity, I constantly need to sit or lay down, and most days I spend close to 20 hours in bed (reading or watching TV or laptop). I cannot do any of the things I used to enjoy, I used to be very active & loved working out daily etc. The fatigue has been getting progressively worse over the last 5 years and now even more rapidly.

I've had tons & tons of bloodwork & nothing is outrageously off. My Vit. D & magnesium were pretty low, iron & B12 borderline low, so I'm taking supplements for all of those, as well as some diet/herbal stuff to improve thyroid & adrenal function as those were both borderline abnormal as well. No lyme, normal RBC etc., somewhat high WBC, normal everything else... The supplements don't seem to be helping one bit, it's only been a month or so but if anything I'm just getting worse by the day.

I'm in my 20's, female... Other symptoms:
-frequent headaches (not quite full-blown migraines but many similar features, when I get full migraines once every year or two I lose most of my vision & go numb on one side of my body)
-wandering pains, often in my lower back or stomach but sometimes just random, and wandering numbness/tingling
-nausea
-wake up feeling like I've been hit by a truck (headache & every bone & joint hurts)
-fast, erratic heart beat, and loud heart murmur (still being evaluated)
-dizziness/vision loss on standing, though this has actually subsided lately

Please please please... I'd really appreciate any insight, I'm so miserable & feeling more depressed & hopeless by the day because of this, I can't imagine living like this forever & I'm afraid I'll end up a lump in a wheelchair. :(

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