Discussions By Condition: I cannot get a diagnosis.

How much longer do I have?

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: feelinfunke
  • September 23, 2008
  • 11:49 AM

I need to know what happens to a down syndrome patient before death. I'm experiencing many more sleepless nights, have endured 16 surgeries 2 yrs ago. I'm constantly throwing up and unable to stand or walk for any length of time. I'm confused a lot now and hallucinating. I am 36. I'm urinating without realizing it and able to float in an 8 ft pool without touching the ground, but in a standing position.
when standing it sounds like a helicopter noise. How much longer do you think I honestly have? I need someone to give it to me straight. As I have a house and a 16 yr old I need to make arrangements for and I want to take care of this myself and be able to say my goodbyes. Thanks

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