Discussions By Condition: I cannot get a diagnosis.

High Protein in CSF, Babinski Reflex and Positive ANA

Posted In: I cannot get a diagnosis. 11 Replies
  • Posted By: ctcollins
  • September 14, 2008
  • 10:15 PM

I am an 38 yr old male and for the past 2 1/2 yrs I have been out of work due to constant head aches and migraines, fatigue, dizzy, constant pain, ringing ears ( very loud ), sensative to sound causes myoclonic episodes, eye pain, blurred vision when hot, eye floaters. Extremely sensitive to heat, when hot have glazed vision and dry eyes, very short rapid breathing and muscle jerking and sweating ( it looks like i am having a seizure ).Everytime I eat and I am chewing solid foods the back of my neck, my tounge, roof of mouth and throat get very tight, cramping and painful making it very hard to eat and swallow anything but soft food that does not take much chewing. All of my fingertips are almost completely without sensation causing it hard to hold objects. Painful cramping in back of neck, visible muscle spams in right hand and arm at rest, R/H index finger keeps jumping up. I always wear sunglasses inside or out due to light makes my eyes and head hurt 4x worse, I also have a severe gait problem i drag both my feet and right foot is twitsted out to the right at about a 45 degree angle. I have to use a cain and still have problems with balance and falling, If i get in any moving object ( car, plane, train, etc. ) i get instant motion sickness and severe head and eye pain. I have myoclonic seizures ( when over heated or over exertion ) and my right arm tremmors (at rest), i also have muscle cramps, pain and stiff muscles. One day my right arm and shoulder locked into a certain position for about ten minutes and could not move it at all and last week while sitting in a chair i became paralyzed completely for about 25 to 30 seconds and started moving in slow motion then was back to normal. There are alot of other problems but would take to long to list and I cant remember alot of them until they happen, But these are the most common.

I have had every test done at two different hospitols refered by my neurologist and have no definate answers to what is the cause, I've had 4 lumbar test that show my protein is at 114, was diagnosed with Myoclonus after EEG test. 6 MRI's no lesions and the last one one of my Neurologist thought i might of had a stroke but the other 2 said I have not, the MRI's on my spine show most of my dics to be degenerative and signs of mild to moderate spinal canal stenosis and mild to moderate bilateral neural foraminal stenosis, and i also came back possitive for autoimmune and ANA at 1:320 in nucleolar pattern, babinski reflex on both feet, Creatinine 1.4 and high macrophage.I have had multiple eeg, emg, ct, blood, urine and all the eye test you could immagine but these are the only definate findings from all my test. If you have any thoughts i would be very happy to hear them.

Thank You for your time, Chris Collins

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