Discussions By Condition: I cannot get a diagnosis.

HELP - Facial pain/headaches - What is wrong with me?

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: fairyloveheart
  • September 26, 2008
  • 10:48 PM

Hi there
Have no diagnosis and am struggling with daily living.
Started Dec 2007 - pain behind right eye, throbbing pain, pretty continual. GP thought 'cluster headache' take ibuprofen. Generally felt lousy all Dec, feverish, lethargic, bad pain still.
Jan 2007 - pain became more intense and all down my nose, behind eyes, forehead, behind ears, bridge of nose - ears started popping - had one episode of blurred vision
GP said 'sinusitis' - use nasal spray and come back in a month
Had eye test, nothing untoward
Feb 2007 - no better, pain worse, dizzy, lethargic - no pain killers touched the pain - gp referred to neurologist
neurological tests showed nothing untoward
ct scan of brain and sinuses - nothing untoward
GP - go away there's nothing wrong with you attitude - try amitriptyline
TRied this and different migraine meds, to no avail, nothing touches the pain.
Pain varies in intensity on a daily basis
April -- referred to ENT - nothing found, camera up nose showed nothing wrong - suggested physio of neck - went for this - nothing changed
May - Pain getting worse
June - Sept - daily battle with pain, trips to docs resulting in antibiotics, various painkillers - none of which worse
There is NO diagnosis - last thing i got was - pain is sometimes unexplainable.
Mucus is clear but there is definately excess amounts of it, in particular when I wake up in the morning and sit up.
I can't go on, the pain is so bed it is debilitating
I think Brain Tumour

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