Discussions By Condition: I cannot get a diagnosis.

Fevers, Blood Counts... what is going on?

Posted In: I cannot get a diagnosis. 13 Replies
  • Posted By: carli_justin
  • October 26, 2007
  • 04:11 PM

First of all, I want to thank you for reading this. I am a 22 year old female with the following diagnosed conditions:

hypothyroidism- age 8
polycystic ovarian syndrome- age 17 (confirmed by laparoscopy)
non-alcoholic fatty liver disease- age 20 (confirmed by laparoscopy)

However, what I'm going through currently is far more distressing than what I've gone through in my childhood years. Beginning the middle of September 2007, I started having daily fevers (worsens with activity, even walking around). I felt like I had the flu and was diagnosed with a sinus infection, but I don't feel it was accurate (other doc gave me zithromax for it). I've had sinus infections before and I've always caught little things like strep throat, mononucleosis (age 14), colds, and flus. I felt achy and extremely tired.

I started seeing an endocrinologist around that time and she immediately noticed my fever. She told me to take a few days off work to recouperate (I'm a teacher), which I did. I never really started feeling better and by the time I saw her in the beginning of Oct., the fever hadn't gone away. She did some blood tests and my WBC count was elevated as well as my platelets. She said she was concerned about how frequently I was sick and did a blood culture. The culture came out negative for bacteria and she then said she wanted me to track my fevers @ 4 and 8 p.m. daily. Meanwhile, the achy bones and fatigue have only gotten worse to the point where I'm having a hard time keeping up with house work. I have also started having muscle spasms (and I haven't been doing virtually ANYTHING but resting) and a few days ago while resting, my heart was POUNDING. It feels like my body is so sick, yet no one seems to know what's going on. I am even having night sweats (to the point where my clothes are damp) about every other night, especially on evenings when I haven't been resting the majority of the day. The fever, sweating, hot flashes, etc. get worse with any kind of work.

My mom called the doctor because she's very concerned and she set me up with an appointment with an oncologist. I go in on Halloween. I was in the ER 2 days ago for weird, STRONG heart beats, but my doc just said "Don't worry anymore, we'll get this figured out." They chalked it up to anxiety, but my heart is still beating really hard, fast at rest. She told me to take a week off work until I see the oncologist because I have absolutely no energy unless I just lay on the couch all day. Also, I can't take anything for the fevers/achiness because they want me to track my symptoms and temperatures, plus it will hurt my liver even more.

I don't know if this is related at all, but I've only probably had 2 periods without hormones since I began menstruating at age 10. I've also been telling the docs about my abdominal pain since I can remember. And, after looking at blood work that was done on me as a kid, my LDH was always really really low and my alkaline levels were high. In a few urine samples I have "too many WBC's to count", but no doctor has ever tried to help me. I have also had a high WBC count in the recent year. All the docs just chalked it up to an "infection", then sent me home w/ antibiotics.

I am at my wits end. I've had to quit college (last semester before my Bachelor's degree too!) and I'm missing a lot of work. All the sites I look at point to cell problems resulting in the bone marrow. I'm just curious if anyone has ever gone through this. Some days (after much resting) I feel alright, but then the next day I'm in bed all day. Any advice is really appreciated.

Thanks for reading again... I know it was a book.

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