Discussions By Condition: I cannot get a diagnosis.

Fever of unknown origin-please help!!!

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: snickers2
  • August 11, 2007
  • 05:38 AM

For the past year and a half I have kept a low-grade fever, never over 99.9, usually 99.1 - 99.6. It has been accompanied with swelling in my feet and hands, face and gums. Finally, after several rounds of anti-biotics that didn't work, my doctor ran a series of blood tests. My Thyroid, RA and most other stuff came out normal, but my ANA came out elevated. So, my doc said he thought that with my symptoms I had Lupus. He treated me with Methatrexate for four months. It took the fever and swelling away. But then, I decided I needed the advice of a Rheumatologist. He ran the same tests and said, no, I didn't have Lupus, but Fibromyalgia and Chronic Fatigue Syndrome. I have had Fibro for 15 years and the symptoms were different. But oh well, he's the specialist, so I listened.

I didn't know much about CFS because I had never been diagnosed with it. It started to make sense because of the extreme fatigue I felt and also running a low-grade fever. But in May, I was scheduled for back surgery and the usual pre-op blood tests were run. I had a bacterial infection in my body and microscopic blood in my urine. The Doc gave me Cipro for five days and I felt great....for the first time in a year. I had my surgery and recovered nicely for about 14 days. Then, the fatigue, the swelling, and the low-grade fever started again. My neurosurgeon tested my urine and I had blood in it once again. He gave me another round of Cipro.....this time for 10 days. It did nothing. My symptoms worsened if anything.

I have found a new doctor and he is running all of the same tests, once again. I'm beyond frustrated. I would like my life back, or at least to feel like I'm semi-myself. Has anyone out there experienced these kinds of problems with Fibro or CFS, or even something else? It's bad enough to live with Fibromyalgia, but I have learned how to do that somewhat. But these fevers and swelling are making me an invalid and THAT I cannot live with, or at least hope not to. Please send my any advice or thoughts. Thanks!!!!!!!

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