Discussions By Condition: I cannot get a diagnosis.

Feels like a heart attack, but isn't

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: Anonymous
  • January 10, 2007
  • 01:20 PM

Current Symptoms:
Chest pain, leg swelling, short of breath, bloating, probably hand swelling
lethargy, exhaustion and heavy sweating with any exhertion,
constipation (but my biology is seldom what I'd call regular - so it never comes up when talking to doctors, and a variety of other probably unrelated issues. Spurts of weight gain >10 lbs, then dieting for months to lose it.

History:
1) Syncop about seven years ago - never diagnosed. Then things started downhill. But it hasn't happened since, either. See #2.
2) 30+ years of obstructive sleep apnea. It's severe, but it's been treated the past 6 or 7 years.
3) Last year spents days in the hospital - every doctor for miles "knew" I was having a heart attack, and treated me for it. But labs and other tests came back with zero heart problems, and quoting a cardiologist "You have the heart of an 18 year old." Symptoms declined over time and life goes on.
3) About Christmas this year symptoms returned. Laying in bed you wonder if your next breath is going to happen and you fear falling asleep. Because of last year's medical fiasco and a $12,000 hospital bill, I chose to stay home and bear the runt of the issues - hoping it would resolve itself in a few days. It hasn't. For the past month I've felt pretty crappy. Latest doctor's visit, no surprise, more heart tests. Results all came back negative.

What I know (from tests):
Lower than expected lung capacity
High cholesteral, very high according to docs (medication for this just about killed me so I am not treating it - Lovostatin made me feel absolutely horrible - ***n near as bad as I feel today).
Perfectly good heart
Blood sugar normal
Some protein in my urine, but normal blood protein levels.
- its unclear they tested thyroid function (memory is foggy - did I mention reduced mental function) - maybe they did...

What I don't know:
It is beginning to feel like a metabolism problem. Just not buring calories like I should; and my life long battle with the toilet may be transforming into a problem.

They say they will refer me to a nephralogist, but aren't in any hurry (hey, they feel fine, what's the rush?).

Is an endoctrine specialist something I should also press for or seek out?

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