Discussions By Condition: I cannot get a diagnosis.

Extreme Fatigue/Sleep Problems for past 7 years

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: Anonymous
  • December 5, 2009
  • 02:35 PM

Here are some of my problems:
-Extreme fatigue
-Insomnia along with a free rolling sleep cycle(I think this is because I just can't get enough sleep)
-Extreme Drowsiness 24/7
-Weight gain.
-Confusion & trouble concentrating.
-Repeated awakenings in the night(every 2 or 3 hours)
-Swelling in my left wrist & swollen ankles.
-Joint problems.
-Trouble breathing.
-Heart palpitations.

I started having these problems when I was just 15, I was a straight A student with perfect attendance when all of a sudden one day I just could not wake up and get ready for school anymore. I pushed myself to continue to go but eventually was told I was missing too much & to not bother coming back. I feel like I have not slept in 7 years. I used to work out at the gym everyday and now I still go about once or twice a week but cannot do more than 3 or 4 minutes of cardio max w/o having to take a break. I have no job & do not go to school, everything is very difficult for me. Here are the things I have been tested for:
-Thyroid problems(I saw an endocrinologist)
-Anemia(probably iron deficiency)
-Vitamin d deficiency
-Sleep apnea
-Diabetes Insipidus

I am currently working w/a sleep specialist. She thinks I have a genetic disorder, though the only one in my whole family, that causes a free rolling sleep cycle & she told me to take melatonin but it keeps me up all night. I know that doesn't make sense. I am going to see her again to discuss things further. I really need help but I feel like the doctors don't listen & think it's all in my head or it's not as big of a deal as it is. I know a lot about medicine, I've learned trying to figure what's wrong with me for the past 7 years. Right now I try and cope with my problems with caffeine when I wake up & 50 mg diphenyhdramine HCL when I go to sleep. It has helped a little but it is impossible to wake up & go to sleep at the same time everyday & has not helped my fatigue at all. If you have more questions for me please do ask. If I told you everything, I would need to write a book. I'm open to suggestion, please help.

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