Discussions By Condition: I cannot get a diagnosis.

end of my rope

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: wvinhale
  • April 13, 2008
  • 11:43 PM

I am a 30 year old male and until three months ago in the best shape of my life. I woke up one morning with a large mass on the side of my neck, figured I was fighting off the flu and shrugged it off. The next week it got a little bigger and then i noticed one above it behind my ear. Still figured they would go away. My wife convinced me to have the doctor call in some antibiodics so i took them and still no changed. When she noticed that they were hard and fixed she convinced me to go the er. Doctor said i probally had staff gave me a shot and another round of antibiodics and sent me home. A month later and they were still there. Seen another dr. in another er and they thought it would be a good idea to biopsy, it came back unkown. Several weeks and drs later my condition is only getting worse and they cant find out why. I have severe night sweats and almost constant low grade fever, constant nausea and vomiting, severe weight loss average of 2pds a week total of over 50 now. Painful shocks and numbness in various parts of my body. I am so tired and weak now that i can no longer work, but i cant draw disability on an unkown disease of defect. I spend at least a couple days a week in the hospital on fluids because i get so dehydrated and weak i start blacking out. They have tested for every known infection out there even ones from other countrys and the one thing that all the drs agree about is that i have NO infection. I have had several x-rays and scans and they all say they are quite large but give me no answers as to why. Every doctor has given me different types of anti-nausea meds and they dont work. Now they are attributing most of my problems to stress. and that makes me even more stressed because i feel like i'm dying and they dont seem all that concerned. I am supposed to go wed of this week to have one of the many enlared nodes in my neck removed so they can do futher testing because now they say they didnt get enough of a sample to test thouroghly with the needle biopsy. I am under the care of a ent doctor now but he seems at a loss as to what i may have. At least its comforting to know they are people out there with the same problems, so i dont feel like maybe i am going crazy. I have been on meds now for three months for depression, anxiety, and insomnia but quess what they make me feel worse and the symptoms are still there. I am going to insist that they test me for castlmans, and sarcodoises because the symptoms fit with mine perfectly. If there is anyone out there that has these diseases or symptoms like mine please email me. I feel like sometimes i am going to be dead before i get an ansewer from the drs, so i am taking matters in my own hands.

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