Discussions By Condition: I cannot get a diagnosis.

Ear, head and facial pain

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: Anonymous
  • December 4, 2008
  • 03:51 AM

The first week of September I got an ear infection. I waited about a week because I get them often and sometimes they go away on their own - this one did not. The doctor confirmed the infection and put me on antibiotics. I took the full prescription as directed and was told to wait an additional 2 weeks before coming back if the pain did not improve. The pain got worse and spread to both ears and into my sinus passages. There was more pain than I normally have with a sinus infection, horrible taste in my mouth, a lot of post nasal drip and swelling under my eyes. I was put on round 2 of antibiotics, decongestants and a nasal spray. The pain continued to get worse and felt like it actually spread to the bone behind my right ear. Sometimes it is so bad it goes through my gums to my teeth and down my jaw. I have also had a sore throat and a stiff neck, vertigo, nausea, minimal vomiting, sleeplessness and general fatigue along with some confusion. The Ear, Nose and Throat specialist said it could not be sinus related because sinus problems don't ever cause pain, so he ran me through a treatment process for TMJ, which was recently ruled out by my dentist. The pain continues and has spread to include the top of my head on the right side, muscle spasms in my eyes, dizziness, poor depth perception, inability to concentrate for long periods of time, slow thinking, always tired and an overall feeling of not being well. Most of the time when I hear music or people talking or sounds in general it feels like someone is stabbing a needle into my ear - sometimes just the right side other times both sides. Pain has also recently moved to include my shoulder and what feel like muscle spasms in the back of my head. A neurologist recently told me that there is nothing neurologically wrong and he believes the problem is inner ear related. I will be having an MRI done on Friday. I am frustrated, a little scared and tired of the pain. Normally I'm very easy going and I'm becoming increasingly short tempered and irritable. I have to take sleeping pills just to sleep through the pain and then I still wake up in the middle of the night with my ears ringing and a throbbing sensation in my right temple. I'm nervous that there is something wrong that no one is catching and that it's goinig to cause permanent damage.

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