Discussions By Condition: I cannot get a diagnosis.

Doctors STILL don't know what's wrong!

Posted In: I cannot get a diagnosis. 53 Replies
  • Posted By: emilymay8603
  • July 25, 2007
  • 11:45 PM

Hi, I was on here a few months ago and I have yet to be diagnosed. I have put here some old and new information. If anyone can help me, I would owe my life to you.

I also printed this page out and gave it to my Primary Doctor.

March 8th 2007- I went to my primary doctor, I was having lower abdominal pain, and pain when I went to the bathroom. He prescribed me antibiotics and said I probably have a UTI.

March 9th 2007- Got a pap smear from the OBGYN

March 10th 2007- Sudden onset of severe nausea, and lower abdominal pain. Started daily fever of around 100.0. Started month long headache on right side of head, that would go away when taking Tylenol but would return when Tylenol wore off. Did not mention to primary dr, thinking I probably had sinuses.

March 12th 2007- I went to the emergency room. (Desert Valley Hospital) E.R said I have Pelvic Inflammatory disease. I was prescribed antibiotics.

I took all antibiotics as prescribed. But continued to have the same symptoms.

Around March 29th 2007- I had been having bad abdominal pain and I was still nauseous , went back to my primary doctor and told him I am still feeling horrible. He said I probably have Bacterial Vaginitis. He prescribed me antibiotics.

April 3rd 2007- I went to a different emergency room. St. Mary's) they did a Pelvic cat scan, pelvic exam, and blood tests. They said they cannot find anything but a small cyst on my left ovary, that shouldn't be causing any symptoms. I mentioned my daily headaches to emergency room, they did not seem concerned.

April 9th 2007- I have had a mild fever, bad headaches 24 hours a day, nausea 24 hours a day and bad stabbing pains that come and go for over a month. I have barley been able to leave the house for all this time. I cannot go shopping, because when I stand for too long I get really light headed, and I feel like I am about to throw up.
Mid April- noticed upper abdomen was very tender, directly under my ribcage, in the center. This tenderness is usually only felt when lightly pressing in the spot. When nauseous, pain can be felt without touching that spot. The more nauseous I am, the worse it hurts.

IUD taken out.
I still feel very nauseous 24 hours a day. I haven't been able to really go anywhere since the beginning of March. I can barely clean the house. If I stand up for more than about 10 minutes I start feeling really dizzy and even more nauseous . I feel like I am car sick all the time, and when I am in a car I feel worse. I can't watch certain things on t.v, any type of fast motion makes me sick, for example watching cars race around a track, or watching someone playing a video game.

*Lower abdominal pain stopped a few days after IUD was taken out.

June 4th 2007- Went to Emergency room. (Desert Valley Hospital) Had abdominal and pelvic CT scan. Both came back normal expect for the pelvic cyst. E.R. Doctor said that I have G.E.R.D, and that, was causing my nausea, upper abdominal pain and pain in my ear. He said when I lay down the stomach acid goes into my ear. (I do not ever have heartburn)

June 14th 2007- Had upper and lower GI series done. Results were normal.

June 18th 2007- Went to Primary Dr. I told him I had been experiencing hearing loss, and ringing in right ear. I also told him I have a lump on my neck right under my right ear. He said it was probably just a swollen lymph node, due to an ear infection. I was prescribed antibiotics.

June 27th 2007- Went to G.I. Dr (Weight was 103lbs) Told him I am on Meclizine for nausea, and it is helping a lot. He said that it is good that the medicine is working, and since it is working there is nothing more he can do for me. I told him about the constant pain in my abdomen, I asked him if it could be from a small hernia I have above my belly button, the hernia is immediately under where the pain is. He said I do not have a hernia and the lump I have is from my belly button being pierced. I told him that I just had my belly button in January of 2007 and I've had this lump since 2002. Then he said I probably have endometriosis, and that there is probably endometrial tissue there. When the G.I. Dr. was pushing around my "hernia" and the tender spot above it, the pain was so bad it made me cry.

July 2nd 2007- Went to primary Dr. (weight was 96lbs) Told him all glands in neck are still swollen including the one under my right ear, which had gotten bigger. Dr. ordered CAT scan of my neck.

July 11th 2007- Went to Primary Dr. (weight 97lbs)

July 17th 2007- Had IV contrast CT scan done of my neck. Results are normal.

July 24th 2007- Went to primary Dr. He said my CT scan of my neck was fine. I asked about the bump under my ear, and he said it is probably a swollen gland. He asked me if I or anyone in my house has been sick, and I said no. He is going to have me have an M.R.A.

July 24th 2007- Current symptoms:

Nausea when I do not take Meclizine

Nausea is worse immediately after eating

Headache almost daily on right side behind my eye and temple

Swollen lymph nodes throughout my neck

Swollen "lymph node" under my right ear is growing and when pressed on I can hear the sound of a heartbeat in my right ear.

("lymph node" whatever it is, is about the size of a dime, it is hard, does not move, and it isn't completly smooth, it feels like tiny crators sp. on it. It usually only hurts when pressed on firmly. However yesterday, I went to my friends house who I haven't seen in forever, and we talked and smoked cigarettes for hours. When I got home that lump hurt really bad for a couple hours. Not sure if it was from all the smoking or all the talking.)

Occasional hearing loss and ringing in right ear

Tenderness in mid upper abdomen (which is there 24/7)

Dizziness when standing for more than about 10-20 minutes

Weird things that I haven't mentioned to any doctors because I'm pretty sure they will think I'm crazy or a hypochondriac: By the way, I am fully aware of how crazy the following sound, just please keep in mind, that people know their bodies pretty well, and when something changes you notice it. The following may or may not actually be a symptom of anything beside insanity:

Increased sweating (I know it's very hot outside, but normally I am not a sweaty person, and this happens even when I'm in a cool room. I sweat from every part of my body, even my toes will have beads of sweat on them)

Night chills? (every night I wake up in the middle of the night freezing, I cover with another blanket, then I wake up soaking wet with sweat. This goes back and forth all night long)

All cuts, scrapes, and scratches become infected (pretty self explanatory)

Hands get wrinkled extremely fast when in water ( I know hands do this in water, however I've noticed lately that they wrinkle within 30 seconds to 1 minute of being in water. I've noticed them being wrinkled after using the phone, or even holding a cold drink for a short time.)

Thank you SO very much for taking the time to read this.

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