Discussions By Condition: I cannot get a diagnosis.

Doctor says "thinks" knows whats wrong

Posted In: I cannot get a diagnosis. 14 Replies
  • Posted By: frustrated9967
  • October 14, 2008
  • 11:58 AM

Well went to see my Rhuemy last week and she is sure I have Anti- synthetase Syndrome with overlapping Systemic Scleroderma and Myositis.

I had a EMG which showed onset Myositis with unknown cause. What is that supposed to mean???

I will be either starting cytoxan or doing IVIG, which ever the Anti Synthetase Syndrome specialist recommends for me. My Rhuemy feels the cytoxan would help me most as I have eye involement as well.

So we will see what happens. Really dont like being on toxic meds with just a "thinks" knows whats wrong diagnosis.

Terri

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