Discussions By Condition: I cannot get a diagnosis.

Discouraged from 30 years of chronic pain

Posted In: I cannot get a diagnosis. 10 Replies
  • Posted By: Anonymous
  • December 22, 2006
  • 05:15 PM

Hi, Ive lived with chronic pain in my left hip radiating down the back of my left leg for 30 years, when I was 18 I had surgery for a tethered spinal cord, and my pain improved somewhat, now in my 40s, over the past 20 years, my quality of life has been decreasing. Every time I see a neurologist, I get the brush off, I can't get in to see a neurosurgeon, I have had an increasingly difficult time with poor immunity. I have asthma that has become increasingly worse (advair 500 twice a day) every time I get a 'little' bug, it takes months to get well. I was not allowed to go on a trip last year due to my doctor being concerned that I would get sick. I have esophageal reflux disease and take nexium for that. I have extreme sensitivity in my hands and feet to cold, and they get tremendously painful. I am always tired. I can no longer work, I now experience very debilitating pain in my neck on the right side, radiating down the arm and up into my head. I often have quite a large swollen bump on my neck when the pain is bad. Does anyone have any ideas where I can turn? Am I seeing the wrong specialist?

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