Discussions By Condition: I cannot get a diagnosis.

Desperately need help, please read!

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: gomom32
  • March 5, 2008
  • 07:18 PM

Over the past decade my husband (age 38) has experienced increasingly acute attacks of bilateral knee pain. The pain is so severe that I would put it on par with kidney stones and unmedicated labor. I have experienced both of those and yes his pain is that acute.

When the attacks hit he cannot move, eat, or sleep due to the intensity of the pain. He breaks into a sweat from the pain, and is reduced to fighting back tears and gasping for breath when it hits. The attacks can last 3-5 days. The time between the attacks can be several weeks right now. When he was younger, the time between attacks was longer.

We have consulted at least ten doctors. ONLY ONE took this seriously enough to run extensive tests. Dh had an x ray of both knees, an MRI of his lower spine (not sure why they didn't do an MRI of the knees), and a number of blood tests. He tested negative for everything.

There is something very wrong, and we do not know what else to do! His pain is so severe today I think we should go to the ER. *It is that bad*.

A few more points that need to be included:

**Dh experiences what he describes as "tingling, pins and needles, popcorn sensations" during attacks, below the knee, in both legs. When he is not experiencing an acute attack, he often says his lower legs feel like they are "vibrating and tingling". The latter is not painful but it is uncomfortable and fairly constant.

There is no joint swelling or warmth of the knees. However, he does seem warm to me in general when he has an attack.

During an attack he gets some relief from warmth on the knees and heavy even pressure atop both knees. Cold is intolerable during attacks. He often wants to pile blankets over his legs.

The last point is odd but should be included: he will almost always suffer an attack when a front of heavy weather is moving into our area. I know that sounds odd, but I have noticed this pattern. Over-exertion will trigger attacks too.

Dh is 38, average weight, non smoker, non drinker, no drugs. He has no past injury to explain the bilateral knee pain.

If you have *ANY* suggestions as to what this may be we are desperate. Dh cannot move, eat, work, or really function during these attacks. Something is *wrong*; this is not normal! Any advice you can give is appreciated. Thank you.

Reply Flag this Discussion

4 Replies:

Thanks! A moderator will review your post and it will be live within the next 24 hours.