Discussions By Condition: I cannot get a diagnosis.

Desperate :( stomach, joints, skin, etc..

Posted In: I cannot get a diagnosis. 11 Replies
  • Posted By: Claire555
  • May 5, 2010
  • 08:54 AM

I have been trying to get a diagnosis for 6 plus years. I have a wide array of symptoms and I am having a very difficult time finding any answers at all. I understand diagnosing some conditions can be difficult and a long process. I am just very very tired and any insight that may be able to help will be appreciated. I am a single mother of three so being this sick all the time is really taking its tole on my energy.
I am seeing an internist currently. I have been tested for crohns (negative), celiac (negative) twice awaiting third test result, ana arthritis tests (negative), cerebral angiogram (negative), x rays ( neg for inflamation or damage to joints)

Symptoms:
Large and small joint pain, stiffness, visible inflamation
Recurring loss of shoulder movement due to intense pain
Skin rashes
Photo-sensitivity
Cold all the time, but body radiates heat
Cold hands/ feet, either red or purple
Numb fingers, comes and goes
Night sweats, soak the bed
Low body weight and height
Frequent urination
Abdominal distention
Abdominal pain, cramping or sharp pain
Ulternating diarrhea or constipation
Anemia
Blood in stool
Hypoglycemic symptoms
Low blood pressure
Unexplained and easy bruising
Beau's lines in nails, brittle, peeling, brittle hair
Mood disorder
Headaches, cluster, migraine

Vision problems - some loss of peripheral vision, focus, tear in retina, high pressure measurements, and enlarged ocular cups? being screened for glaucoma regularly

I am sure i have forgotten some things..

I am a 31 year old female. If that helps any. Any insight or suggestions at all will be appreciated so much. ah yes.. I am schedualed for a colonoscopy and am hoping that might reveal something. I should mention i do get very red across the nose and cheeks esp when i am feeling at my worst. I am not sure if it is a malar rash or if it is not. Or if it matters at all. Something that I have noticed and others always ask if sun burnt or comment on the red across the face.

Thank you for your time ...

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