Discussions By Condition: I cannot get a diagnosis.

Debilitating Headaches / Lupus

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: Anonymous
  • July 15, 2008
  • 09:19 PM

I've been suffering from chronic headaches/migraines for a year now and cannot seem to get a handle on them. Some have lasted for as long as 32 days and they are extremely debilitating. The symptoms first started a year ago whem my temples started swelling multiple times a day for no reason (to the point my glasses no longer fit on my face). I then developed migraines (rarely light or sound sensitive, but severely motion sensitive, and often tingling throughout my face). I do feel the tension in my neck and it comes all the way through my jaw.

Now, I am displaying silimar symptoms to an exertional headache as I can barely walk 20 steps without having to take a break as the pain get so severe in my head. I feel the pressure build up and the migraine come on (like a needle through the top of my brain). If I push myself too far, I will bring on a migraine that will last for days or weeks. I cannot do any activity: stairs, dishes, ...I even have to pace myself to go to the bathroom. Also, exciting conversations, movies, or scenarios such as someone cutting me off on the road can make me sick for days. I need help.

I was diagnosed with Lupus (SLE) three years ago but all my doctors and all my bloodwork have confirmed that my Lupus is quiet.

All brain MRIs and scans have come back normal. We've tried most all medications. Imitrex injections work best when the pain becomes too severe but I can't shoot up forever and furthermore, I am limiting my life and activites and I cannot go on like this.

Please, any advice.

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