Discussions By Condition: I cannot get a diagnosis.

CONSTANT daily headaches

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: bren292000
  • October 5, 2008
  • 05:57 PM

Hello I really need some help figuring out what is going on with my husband he is 37.He has had daily (nonstop) headaches for almost a year now. double vision, lip tingles (occasionally) He didn't tell me until 5 months ago ( he didn't want to worry me plus the thought it would go away on its own) The easiest way he could explain how they felt was a constant "brain freeze" we have went to neurologists, eye doctors, chiropractor, and internists I'm really worried wondering if we will ever figure it out.
These are the tests he has had:
Brain MRI: Showed a few tiny spots in the white matter on the frontal lobe which could be the findings in MS, Migraine headaches, vasculitis, head trauma, TIA's
EKG: normal
Eco: normal
not sure the exact name for this test
Bubble test (where they check the pressure in your head): Normal
Brain MRV: normal
Spinal puncture: normal
Tons of blood work: normal
EEG: waiting on results

He also has double vision which he swears he has had all his life just has gotten worse. They gave him prism glasses which he only wears occasionally he only gets the double vision when he is tired or watching tv.

He has tried SOOO many different medications none have worked for him they first thought he had migraines, but in my gut I knew that wasn't it sound, light, none of those bothered him, and where they were constant I just didn't think that could be what it was. They also did the testing they test reflexes and things for MS, and both neuroligist didn't think he had that.
He is on Lyrica 400mg daily, ultram and they do take the edge off of it, but what is causing it. So now im begging for some help! This is such a bad feeling not knowing what is wrong any suggestions would be so appreciated.
thank you so much for taking the time to read this long post.:confused:

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