Discussions By Condition: I cannot get a diagnosis.

ckd stage 4? wtf.

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: Anonymous
  • October 29, 2008
  • 00:11 AM

Okay I will keep this short.

My child's mother went to the ER back in July for chest pains. They found that she had an enlarged spleen but in running the test realized that her kidneys weren't functioning properly and referred her to a kidney specialist. She got blood tests and an appointment (3 months later) last week and the doctor said that her gfr is at CKD stage 4.

She is 23 and our daughter is 4 and I am scared as heck.

She said she feels a little fatigue and every once in a while a numbness in one of her hands but other than that she feels fine and works six days a week as a cocktail waitress. She also only pees like twice a day. I have been reading what all this means on the internet and this whole ordeal is nothing short of surreal.

I need to know if there is any other condition that this could be that may be reversible. Is there any hope that something could be messing up the diagnosis or the tests? I keep reading that people with this condition that don't catch it until stage 4 usually die within 2 years. Our daughter will only be six. I can't raise her alone. I keep dreaming of her getting catheters stuck in her neck and chest cavity. She is going in tomorrow for a renal ultrasound and they are running like 30 other tests to try to find out what the source of the problem is. Is there any hope?

Please help.

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