Discussions By Condition: I cannot get a diagnosis.

Chronic Appendicitis

Posted In: I cannot get a diagnosis. 19 Replies
  • Posted By: Anonymous
  • May 11, 2008
  • 06:56 PM

I'm a 27 year old female that is having pain in the lower right side of my abdomen for quite some time. First the doc's thought it was a kidney stone but that has been ruled out. It all started with an attack of pain that brought me to the ER with pain just under my navel and that night they couldn't pinpoint where the pain was exactly so they couldn't do any tests......don't ask but that is the stupidest thing I've ever heard!!! The pain has since moved to the lower right side of my abdomen and it is very sharp at times. It gets worse if I move in any way such as walk, laugh, sneeze, etc. I've been doing some research on the internet because doc's keep telling me that this could be undiagosable even when I get my CT scan. I've come up with a condition called chronic appendicitis and found another forum that people wrote in a few years ago and they are explaining the same symptoms that I have including "gurgling" in the area of the pain and they too didn't have a fever or a high WBC count but had a loss of appetite and nausea. Eventually they found a surgeon who agreed to remove their appendix and the pain has been gone ever since. This is apparently a hard condition to diagnose because of the fact that there aren't really any tests for it and once the appendix is removed is the only way to truly tell that it was chronic appendicitis. I've had a pelvic ultrasound to rule out ovarian cysts, etc. Is there anyone out there that can spread some light on the situation and explain their symptoms if they ever had chronic appendicitis?????

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19 Replies:

  • I have the same symptoms now for 12 days. They started out near the navel and have moved to the lower right side. last week i had 2 trips to the e.r. where they ran the full gamut full of tests, only to be sent home both times after seeing doctors and surgeons. One of the surgeons showed more concern for this being appendix oriented no matter what the ct scans showed, but i guess he was overruled. I have constant dull pain in the lower right side, that gets sharp from 5-9 in intensity when i move or cough or for no reason at all. I have been forcing myself to eat and drink water after nearly a week of extreme loss of appetite and vomiting bouts. I have watery stools the past few days. I must admit that this has me somewhat stressed and worn out. I am heading back to the hospital again tomorrow to try again. They have me scheduled for a colonoscopy, that is it. I too am convinced that such a thing as cronic appendicitis exists. Good luck with your problem.g.t.
    garbovatwin 21 Replies Flag this Response
  • oh yes, i am a 57 year old post op transexual female.
    garbovatwin 21 Replies Flag this Response
  • oh yes, i am a 57 year old post op transexual female.hiya. just read this. Yours differs to my pain. Mine is a dull burning pain that is never really sharp. The majority of time it is on my right side above my hip. Not in the appendix region
    nathan69 6 Replies Flag this Response
  • I'm a 27 year old female that is having pain in the lower right side of my abdomen for quite some time. First the doc's thought it was a kidney stone but that has been ruled out. It all started with an attack of pain that brought me to the ER with pain just under my navel and that night they couldn't pinpoint where the pain was exactly so they couldn't do any tests......don't ask but that is the stupidest thing I've ever heard!!! The pain has since moved to the lower right side of my abdomen and it is very sharp at times. It gets worse if I move in any way such as walk, laugh, sneeze, etc. I've been doing some research on the internet because doc's keep telling me that this could be undiagosable even when I get my CT scan. I've come up with a condition called chronic appendicitis and found another forum that people wrote in a few years ago and they are explaining the same symptoms that I have including "gurgling" in the area of the pain and they too didn't have a fever or a high WBC count but had a loss of appetite and nausea. Eventually they found a surgeon who agreed to remove their appendix and the pain has been gone ever since. This is apparently a hard condition to diagnose because of the fact that there aren't really any tests for it and once the appendix is removed is the only way to truly tell that it was chronic appendicitis. I've had a pelvic ultrasound to rule out ovarian cysts, etc. Is there anyone out there that can spread some light on the situation and explain their symptoms if they ever had chronic appendicitis?????Yes it's hard to diagnose. Any appendicitis is a clinical diagnosis. It won't help to ask other people what their symptoms were. Since by definition chronic appendicitis doesn't have any routine findings, everyone will present differently. Your best bet is to express your concern to your doctor and let he or she explain it to you. Appendicitis is the most likely explanation for right lower quadrant pain, but there are many many other things that can cause it, including things that no one will ever be able to diagnose.
    Anonymous 42,789 Replies Flag this Response
  • The lower right side of the abomen is a common spot for Crohn's disease. It manifests there since that is where the small intestine joins the colon (near the appendix). Have you had a colonscopy done?
    Anonymous 42,789 Replies Flag this Response
  • The lower right side of the abomen is a common spot for Crohn's disease. It manifests there since that is where the small intestine joins the colon (near the appendix). Have you had a colonscopy done?so, as the room filled with no less than 8 surgeons and future surgeons, i was shown the images of my colon.Most people's colons are attached, this differs from one person to the next as to where they are attached. Evidently, probably since birth, my ascending colon is attached a bit higher up than usual. It moves. It is a free spirited colon. teeheeIt moves towards the center at times, perhaps it always has. There is no rupture, there is no permanent kink causing an obstruction, there is no volvulus choking off the supply of blood and oxygen needed to maintain a healthy bowel, but it does move. It changed positions during the barium enema simply by changing positions during the test.so what does this mean?I can live with it...deal with the pain it brings when it moves a bit too far...OR I can choose to have an elective surgery at which time they would go in laparoscopically and remove about an 12 inch section of the colon that is moving, including the appendix, reattach the small intestine to the new section of colon, and if all went well in the surgery,during the week stay in the hospital the colon would be tested to insure it is functioning properly. There would be no need, IF ALL WENT WELL IN THE SURGERY, to create a stoma for colostomy.Healing time post op, barring complications, would be 8-12 weeks. so, i have a lot to think about it seems...live with this, or do that and live with that.time will tell.cheersgarbova
    garbovatwin 21 Replies Flag this Response
  • Mom used to say that the appendix is the oil can of the intestine. Not enough oil in the diet, and it will hurt, because it doesn't have the material to do it's job.Medical science, the cut, burn, poison and scrape AMA whichdoctors have not caught on to this yet. They probably arent' interested either, because the cure isn't a drug. A teaspoon of vegetable oil will usually banish the pain almost immediately. This brought a teenager out of the hospital with a "just fine" diagnosis, after she had been taken in one evening, and scheduled for surgery (Appendectomy) at 6am the following morning. Oil sneaked in at 7pm, Fever abating by 9pm, at 11pm told that she could go home in the morning if she was doing this well, and did so.Her father, my boss, was leaving the office shortly before 5pm to get to the hospital to see his daughter who had just been hospitalized.Figuring it was probably too late to do any good, and wondering how to broach the subject of alternative medicine without putting my boss (or myself) on the spot, I suggested:"In our family, no one has ever had appendicitis, because mom knew some old wive's tale that kept it away."This way the boss could say something like, "Yeah, stupid old wive's tales," and rush off to sacrifice his daughter on the altar of conventional medicine.But he surprised me with his answer. It was a classic."Listen, I would carry frogs legs around a stump in the moonlight if it meant that my daughter didn't have to go under the knife."The next morning he came to work with this big grin on his face. He told me how he snuck a little bottle of vegetable oil (any kind) in, and pulled the curtain across so that none of the nurses could see what he was doing."Here, take this," he said, and gave her some.After he told me about her fever dropping and he pain stopping, I asked how much he gave her. I'd suggested a tablespoon. He said, "Oh, about six tablespoons full."I said, "Oh my goodness! It's a wonder she didn't gag and vomit!""Well, I wanted to be sure," he said.My only regret is that I didn't sell him the information for half (or even a tenth) of what the operation would have cost him. This happened in the early 1970's. Mom's still alive at 97, and of course she still has her appendix.Good luck.One of the best oils for general cooking is Coconut Oil. (The "Tree of Life" mentioned in the Book of Revelation might in fact be a PALM tree!)healerdealer (Norman)
    Anonymous 42,789 Replies Flag this Response
  • Mom used to say that the appendix is the oil can of the intestine. Not enough oil in the diet, and it will hurt, because it doesn't have the material to do it's job.Medical science, the cut, burn, poison and scrape AMA whichdoctors have not caught on to this yet. They probably arent' interested either, because the cure isn't a drug. healerdealer (Norman)My dear HealerDealerWhat a marvelous and uplifting post. If the appendix was my only 'glitch', i would most certainly be heading out to acquire the items you mention. I agree with you about doing anything it takes to not go under the knife. There are always complications and a price to pay somewhere down the road, always.In my case, I have a mobile ascending colon that has been that way since birth. Oddly enough, in my research on it, I've discovered that this is very common in Eastern Europe, Russia, and the Persian Gulf, but not so much here in the u.s.a. Now, because I am older and my parts are heading south, tee heee, I guess that perfectly functioning colon has a bit more room to move, or at least more leeway to do so.I have decided that a bowel resection at this time, on a perfectly healthy colon, is not something I am willing to undertake. There is a procedure call Lapro Cecopexy, where they create a peritoneal flap and attach it to the colon to hold it in place. The surgeons mentioned this in passing as if it were useless to do, not mentioning it by name, and skipped right to the removal of a perfectly healthy colon. The surgery has a 93% non occurence for movement occuring again. At my age, that is not bad I must say.So, once again, in a few weeks, hi ho, hi ho, it's off to tell the no. No to resection, and yes, i am at least open to a cecopexy to avoid the life threatening possibility of volvulus in a mobile colon down the road.Again, thank you for your marvelous thoughts and post.stay beautifulgarbova
    garbovatwin 21 Replies Flag this Response
  • Don't be discouraged. There is hope. I went through years of problems with lower right abdominal pain, and constant fatigue. They could not find my appendix or right ovary on ANY test- ultrasound, CT, and all tests came back normal.This week was my worst attack ever, and my temperature actually rose to 37.3 instead of the 36.6 it usually is. They removed my appendix early yesterday and said it was evident there was long term damage, and it was very, very long (so why it didn't show up, I don't know).I feel better health wise than I did before, though still sore.I don't know if you have the same thing, but I do know that chronic appendicitis DOES exist.Be persistent and be patient. Hope you feel better soon.
    Anonymous 42,789 Replies
    • September 6, 2008
    • 03:41 AM
    • 0
    Flag this Response
  • Don't be discouraged. There is hope. I went through years of problems with lower right abdominal pain, and constant fatigue. They could not find my appendix or right ovary on ANY test- ultrasound, CT, and all tests came back normal.This week was my worst attack ever, and my temperature actually rose to 37.3 instead of the 36.6 it usually is. They removed my appendix early yesterday and said it was evident there was long term damage, and it was very, very long (so why it didn't show up, I don't know).I feel better health wise than I did before, though still sore.I don't know if you have the same thing, but I do know that chronic appendicitis DOES exist.Be persistent and be patient. Hope you feel better soon.I have gone way past chronic appendicitis these past 4 months.My colon is a bit of a mess...elongated mobile cecumcecal volvulusulcerative colitis with precancerous dysplasia biopsieddiverticulosisI am looking at half or all of my colon being removed.Never too late to get a colonoscopy, believe me.gt
    garbovatwin 21 Replies
    • September 8, 2008
    • 07:38 PM
    • 0
    Flag this Response
  • I'm a 27 year old female that is having pain in the lower right side of my abdomen for quite some time. First the doc's thought it was a kidney stone but that has been ruled out. It all started with an attack of pain that brought me to the ER with pain just under my navel and that night they couldn't pinpoint where the pain was exactly so they couldn't do any tests......don't ask but that is the stupidest thing I've ever heard!!! The pain has since moved to the lower right side of my abdomen and it is very sharp at times. It gets worse if I move in any way such as walk, laugh, sneeze, etc. I've been doing some research on the internet because doc's keep telling me that this could be undiagosable even when I get my CT scan. I've come up with a condition called chronic appendicitis and found another forum that people wrote in a few years ago and they are explaining the same symptoms that I have including "gurgling" in the area of the pain and they too didn't have a fever or a high WBC count but had a loss of appetite and nausea. Eventually they found a surgeon who agreed to remove their appendix and the pain has been gone ever since. This is apparently a hard condition to diagnose because of the fact that there aren't really any tests for it and once the appendix is removed is the only way to truly tell that it was chronic appendicitis. I've had a pelvic ultrasound to rule out ovarian cysts, etc. Is there anyone out there that can spread some light on the situation and explain their symptoms if they ever had chronic appendicitis????? You may be experiancing irriatable bowel syndrome,or a lower gi infection,or partially blocked bowel and the gurlging you "hear or feel"could be gas moving so a few questions1.what kind of diet are you on? 2.any other medical history,surgeries3. do a bland diet for 2 days and see if symptoms improveSome things you can due in the mean time to helpEat yogurt "probiotics" increase fibre use physillium as the other kind can cause gas and make your pain worse.Try an over the counter gas reducer gasx works well.Did anyone due an ultrasound for the kidney stones?
    simidrm 36 Replies
    • September 9, 2008
    • 03:34 AM
    • 0
    Flag this Response
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  • Twelve years ago, I walked in to the Emergency Room at the William Jennings Bryan Dorn Veterans Hospital here in Columbia South Carolina. I was suffering with severe right side lower abdominal pain, severe diarrhea, dizziness, and cramps all over my body. I told the nurses that I thought I had "Appendicitis". After leaving me in the waiting room for over two hours, they took me in to see a supposed doctor. They ran some tests, and said that since I showed no signs of infection, and was not running a fever, I could not have appendicitis, or any form of it. So they said I had acid reflux, gave me antacids, and sent me back home and to work. Now the long story short part : Since that time I have "never" been out of right side abdominal pain, and I have had many, many, episodes of doubling over, being in sever pain, not being able to move for over an hour until it subsided, and still all the while not having any signs of infection or running a fever. And every time, back to the Emergency Room at the VA, and every time, the same diagnosis, and result, even from there GI stomach specialists, who then, in fact, started calling it irritable bowel syndrome.... Twelve years of this now!!! Well, Monday this week, thank God, it hit me again, same as before, all pain, no signs of fever or infection..., so I called the VA, they said "Come on Down, but call an ambulance, don't try to drive". I called 911, and when the ambulance got here the driver said that they couldn't take me there to Dorn VA Hospital, because admittance there was full, and back logged, Thank God again, and from what the technician could tell, I may have..., guess what..., "Appendicitis". So this time they took me to the local Baptist hospital, where within one hour, they had me in a Cat Scan machine, fifteen minutes after that, the Doctor, a real Doctor I might add, unlike the VA, shouted "Get this man prepared for surgery Now!" It seems that not only did I have a non infectious form of appendicitis, but now the tissue around it had died and calcified over..... After that, and some morphine..., some Angles came in put me to sleep and removed it. They accessed it through my belly button, used a camera and some alien type tools, and glued me back together. I had to stay there in the hospital for a few days, and now I am home recuperating. The pain I have had on my right side for "twelve years" is gone now, thank God again, and those Angles whom ended my twelve years of suffering have my gratitude forever. Unlike how I now feel about our VA Medical Care, and this health condition that was beyond the intelligence of their best nurses and doctors at my VA facility. If I did not feel so much relief, I think I would be as mad as ***l, and asking for a few heads to roll, an apology, and some kind of explanation. My question to you my friend is, "how would you feel about it", and would you be upset to the point of rage? Like I think I might be when I get off of this medication. Not because of my personal treatment, but because this is the kind of treatment our "Sons and Brothers in Arms" are also getting as they come home from their duty in Afghanistan and Iraq with our Nation at War. When I think that this could also be the best care that they get, it really makes me angry. The thought comes to mind that this may be why so many of them are committing suicide not long after some get home, ten in this state since January alone, and that thought really makes me sick. Do you think there is anything that can or should be done to demand some kind of improvement in diagnosing this illness?Now Baptist also found on the CT scan, a mass at the bottom of my right kidney. I googled Chronic Appendicitis spred to , and found this link. If you have a simular problem to mine I would suggest you print the page and take it to your doctor ASAP. http://ezinearticles.com/?The-Challenge-in-Diagnosing-Chronic-Appendicitis&id=226895
    Anonymous 42,789 Replies Flag this Response
  • for me it turned out to be appendiceal mucocele a mucus tumor that grows in the appendix, same symptoms and hard to detect.
    Anonymous 42,789 Replies
    • October 18, 2009
    • 03:23 PM
    • 0
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  • I had the same problem in the past three years, uncomfortable feeling starting in upper abdomen, then nausea, vomiting, and the pain going down in right lower abdomen and around navel. Symptoms are resolving in maybe 48h. I had those attacks almost every 3-4 months in past three years, but with time they got very mild so usually when i get to the doctors they thought it's maybe ovulation, or some ovary cysts, urinary infections, kidney stones etc. I've done bunch of tests (CBC, urine, ultrasound, MRI) which showed nothing, everything was fine, but i still had pain, and starting to believe maybe I'm hypochondriac. Anyway month ago i got the attack, with severe pain, never felt like that before, with vomiting, high temperature, in the end my appendix get perforated and i went for an urgent operation. Fortunately everything went fine, perforation was blocked by surrounding intestines so it didn't make any complication, i feel good now. Anyway everyone who has same symptoms i am recommending you to take a seriously the problem, make some tests, at least CT scan, because consequences may be very serious.
    Anonymous 42,789 Replies
    • November 28, 2009
    • 01:14 PM
    • 0
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  • I have the same symtons and was taken to the emergency room at night. and the gurgling too.I'm a 27 year old female that is having pain in the lower right side of my abdomen for quite some time. First the doc's thought it was a kidney stone but that has been ruled out. It all started with an attack of pain that brought me to the ER with pain just under my navel and that night they couldn't pinpoint where the pain was exactly so they couldn't do any tests......don't ask but that is the stupidest thing I've ever heard!!! The pain has since moved to the lower right side of my abdomen and it is very sharp at times. It gets worse if I move in any way such as walk, laugh, sneeze, etc. I've been doing some research on the internet because doc's keep telling me that this could be undiagosable even when I get my CT scan. I've come up with a condition called chronic appendicitis and found another forum that people wrote in a few years ago and they are explaining the same symptoms that I have including "gurgling" in the area of the pain and they too didn't have a fever or a high WBC count but had a loss of appetite and nausea. Eventually they found a surgeon who agreed to remove their appendix and the pain has been gone ever since. This is apparently a hard condition to diagnose because of the fact that there aren't really any tests for it and once the appendix is removed is the only way to truly tell that it was chronic appendicitis. I've had a pelvic ultrasound to rule out ovarian cysts, etc. Is there anyone out there that can spread some light on the situation and explain their symptoms if they ever had chronic appendicitis?????
    Anonymous 42,789 Replies Flag this Response
  • I'm a 27 year old female that is having pain in the lower right side of my abdomen for quite some time. First the doc's thought it was a kidney stone but that has been ruled out. It all started with an attack of pain that brought me to the ER with pain just under my navel and that night they couldn't pinpoint where the pain was exactly so they couldn't do any tests......don't ask but that is the stupidest thing I've ever heard!!! The pain has since moved to the lower right side of my abdomen and it is very sharp at times. It gets worse if I move in any way such as walk, laugh, sneeze, etc. I've been doing some research on the internet because doc's keep telling me that this could be undiagosable even when I get my CT scan. I've come up with a condition called chronic appendicitis and found another forum that people wrote in a few years ago and they are explaining the same symptoms that I have including "gurgling" in the area of the pain and they too didn't have a fever or a high WBC count but had a loss of appetite and nausea. Eventually they found a surgeon who agreed to remove their appendix and the pain has been gone ever since. This is apparently a hard condition to diagnose because of the fact that there aren't really any tests for it and once the appendix is removed is the only way to truly tell that it was chronic appendicitis. I've had a pelvic ultrasound to rule out ovarian cysts, etc. Is there anyone out there that can spread some light on the situation and explain their symptoms if they ever had chronic appendicitis????? I had cronic appendicitis for a month about 2 years ago. You NEED to have a CT scan. If it is CA then it will show up on a CT, thats how mine was diagnosed.good luck!P.S...if nothing shows up on that. look into a "Sports Hernia"
    Missa995 38 Replies Flag this Response
  • Don't be discouraged. There is hope. I went through years of problems with lower right abdominal pain, and constant fatigue. They could not find my appendix or right ovary on ANY test- ultrasound, CT, and all tests came back normal.This week was my worst attack ever, and my temperature actually rose to 37.3 instead of the 36.6 it usually is. They removed my appendix early yesterday and said it was evident there was long term damage, and it was very, very long (so why it didn't show up, I don't know).I feel better health wise than I did before, though still sore.I don't know if you have the same thing, but I do know that chronic appendicitis DOES exist.Be persistent and be patient. Hope you feel better soon.If you have symptoms of appendicitis, do not take enemas or laxatives to relieve constipation: These medicines increase the chance that the appendix will burst. Also, avoid taking pain-relief medicines before seeing your doctor, because these medications can mask appendicitis symptoms and make diagnosis difficult.http://www.appendicitis-symptoms.org/Take care my dear and all the best
    Anonymous 42,789 Replies
    • September 7, 2010
    • 04:51 PM
    • 0
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  • Anyone out there ever have Cecal Volvulus (tangled intestines) repaired by a Cecopexy?
    Anonymous 1 Replies
    • September 13, 2014
    • 07:24 PM
    • 0
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  • Hello. I have symptoms of bloating at times, which is worse late at night usually 12AM to 4AM. It lasts between 1-2 hours in that range. Major internal gurgling sounds during attacks below belly/right side where the appendix is. Appendix looks normal except for slight enlargement in the middle, tip fluid levels look ok based on ultrasound. Pressure was applied to the tip of the appendix w/ the device & caused radiating sharp pains there, shooting to belly. It is chronic appendicitis. Any update?
    Anonymous 1 Replies
    • October 11, 2014
    • 03:15 PM
    • 0
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