Discussions By Condition: I cannot get a diagnosis.

CFS or Lyme? Please Help

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: llelnino
  • September 1, 2008
  • 09:24 PM

I read many people with Lyme have pain or dullness in the ribcage, is this always the case?

The reason why I ask is because I have just started seeing a LLMD for suspected Lyme and Co's but I dont have any ribcage pain or dullness. I dont have any pain. My main symptoms are

Extreme Fatique(especially after exertion)
Light headed
Overly sensitive to Light, Sound and smell
Multiple Chemical Sensitivities
Loss of Appetite
Loss of weight
Loss of memory, words, concentration
Very low Cortisol
Hormones slightly low as well
Slow reflexes
Mood Changes
muscle aches
trouble staying asleep
Stomach usually upset
Hot Flashes
Temperature Instability(especially in the hands and feet)

This all started in Dec 06 with a severe bout of the flu that took me almost 2 months to recover from then I was fine for a year until getting another flu in March 08 where I continue to suffer all the above symptoms.

In April one CFS doctor told me that I have CFS
based on my symptoms and the fact that my EBV vca igg was 24 times above normal at 2411.

I couldnt just lie down and accept the CFS diagnosis so I started researching. I've worked 2 summers outdoors reading electric meters(2000,2006) and I was always outdoors playing sports or doing something and I live in NJ(very Lyme endemic state) I started looking into Lyme.

I had the Igenex WB test done and it was negative but I had IND and + reactions on 8 bands 4 on IGG, 4 on IGM and my CD-57 was 80, My LLMD thinks that this is very significant and believes that it is very probable that I have Lyme.

My IgeneX WB results are


**23-25 was IND
**31 was IND
**39 was IND

**41 was +


18 was ++
**39 was IND
**41 was +
58 was +

I quess I'm writing all this because I am panicking just looking at every little detail and symptom wishing I had all the Lyme symptoms so that I would be more sure that it is Lyme and not CFS.

I just so scared that if it isnt Lyme that my life is over and that I would have to live like this for the rest of my life. I'm just so scared and wished I knew what was causing this one way or another.


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