Discussions By Condition: I cannot get a diagnosis.

Caudal Regression Syndrome

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: linvs512
  • January 9, 2007
  • 04:33 PM

Hi - I hope someone can offer some help!!:confused:

My nephew is now 2 years old and was born with Full Caudal Regression Syndrome. It has been very difficult for the doctors and hospitals to understand what to do with him. One of his main problems is his Asthma since his lungs have not fully developed and all the problems that come with the syndrome. His breathing, cough, asthma is usually why he ends up at the hospital. Well, we came across a natural product that was developed and studied in Brazil, called Asmazol. It is now being developed here in US and will be out early this year. We've read as much as we can and have followed doctors orders. We have very little to go on - we know the doctor will say no to natural products but the only other thing they tell us is to read up on it more or go to the "web"

Anyone out there have any studies or stories of other families that are dealing with this syndrome and what they have done?? A natural product might help my nephew have a fuller life and we don't want to rule it out just because his doctors have no clue as to what else to expect from this syndrome.

Any suggestions??!!

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