Discussions By Condition: I cannot get a diagnosis.

Castatrophic Vasculitis and no diagnosis.

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: millia
  • November 24, 2006
  • 07:00 AM

Is it unusual to test positive for ANA (1996), then weakly positive (during a catastrophic vasculitis in 2005), then not at all (July 2005, then in Early 2006)?

I was on 10 mg/dy Prednisone when tested in July 2005, and 10mg/dy hydrocortisone in Early 2006.

I can't get a straight answer from the doctors in my HMO. One says that the steroids could have affected the testing, another says not. Outside of my HMO, sources tell me that the steroids definitely affected the tests, which were extensive.

I still have no diagnosis for the cause of the catastrophic vasculitis, a year and a half later.

Granted, there may never be one, but what the heck is with the runaround concerning steroids and the autoimmune testing? Do I need retesting now that I'm not taking any steroids?:eek:

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