Discussions By Condition: I cannot get a diagnosis.

Can someone please, please help me put the pieces of the puzzle together??

Posted In: I cannot get a diagnosis. 8 Replies
  • Posted By: qwertyuiop123
  • November 21, 2008
  • 11:49 PM

I have:

kyphosis
degenerative arthritis in my L4-S1 vertebrae
add
ibs
lax joints- though not hypermobile, just real lax ligaments actually, not the connective tissue or whatever, but supposedly the cause of my joint pain.
Raynaud's


I'm frustrated because I was now told after seeing a doctor at the adolescent clinic of seattle children's hospital that she thinks I have childhood fibromyalgia, or reflex neurovascular dystrophy. So, I just happen to have a fifth medical condition, none of which have much to do with each other, other than maybe lax joints and the arthritis in my back. Why can't ONE doctor look at the whole picture. If I had fibromyalgia wouldn't I have unexplained extreme pain, as opposed to just the joint pain from my dumb ligaments?

She is ordering an electromyography, since my complaint was muscle weakness, not any of the above things, but I'm just so frustrated, I know there has to be a bigger picture here. Can anyone help me find it???

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