Discussions By Condition: I cannot get a diagnosis.

Body hair loss

Posted In: I cannot get a diagnosis. 16 Replies
  • Posted By: Anonymous
  • August 26, 2007
  • 00:08 PM

Over the last few months I have experienced profound loss of body hair. Loss of pubic, chest, leg, arm, beard, and now eyebrow hair. The hair is thinning and falling out. There is heaps of dandruff, particularly on my chin, where I have a beard. It's like a snowstorm if I rub it, and it never runs out.

Has anyone heard of this? I've seen an endocrinologist, who has no idea what's going on. All tests are normal. I've had no major issues or health problems, no major stress. I've lost most of my pubic and chest hair, and now the eyebrows are starting to thin and fall out, which is really concerning to me.

I don't know what to do. The endocrinologist says to come back in a couple of months, and by then I will have lost much more hair. The hair on my head is fine. I still have that. My problem is just body hair.

Has anyone heard of this?

Reply Flag this Discussion

16 Replies:

  • So far I've seen a GP, 2 TCM practitioners, an endocrinologist, and now a naturopath. No one has any ideas about what could cause this problem. My pubic hair has thinned radically, and most of it has fallen out. My beard hairs are falling out, and my eyebrows are thinning now too. I'm taking Chinese herbs, zinc, Saw Palmetto (herb), and none of it seems to work. I eat well, but I don't eat meat. I eat fish though, and sometimes eggs. The Chinese practitioners recommend that I take up eating meat again. Any ideas?
    Anonymous 42,789 Replies
    • September 1, 2007
    • 06:54 AM
    • 0
    Flag this Response
  • Sounds like hypothyroidism. Loss of body hair is common, especially the outer third of your eyebrows, your pubic hair, and thinning of your head hair.You should request copies of the tests which your endocrinologist says are "normal" and see for yourself if they are. Every person is different some people can have slight changes in their TSH levels and be very ill with hypothyroidism.Any other symptoms?
    Anonymous 42,789 Replies
    • September 2, 2007
    • 03:28 AM
    • 0
    Flag this Response
  • Thanks a lot for the reply, Dxd. I read that info about hypothyroidism. This site has some excellent resources and information. I'm not getting the outer eyebrow problem, though. My hair loss is thinning everywhere, all over, and seemingly without any rhyme or reason. But it MUST have a reason, it just doesn't make any sense. I can't see how it can be a dermatological problem because the hair is thinning, not just falling out. I've noticed it thinning slightly for years but who really bothers with thinning body hair? When it starts to fall out, you bother. When it covers your sheets, the shower, desks that you're working at, filling up everything from mobile phones to computers with short thin hairs from your arms and hands, and it doesn't grow back, you worry. I'm really worried about my beard, my eyebrows and pubic hair. It's coming out completely. I'm very careful with my diet. I take vitamins and suppliments (never more than directed). I can't see how it could be genetic because no one in my family has had a problem like this. I've just had annother blood test for thyroid, and I'll take all these tests to a naturopath just to be sure. To be honest, I don't have much faith in naturopaths. I don't have much faith in doctors now either. If the problem isn't something that they know exactly what to do with, they avoid it. I wonder if there's anything else I can do. What else can I do?
    Anonymous 42,789 Replies
    • September 2, 2007
    • 07:07 AM
    • 0
    Flag this Response
  • Thanks for the reply, Dxd. I read this info as well. It could be a thyroid problem, but SURELY an endocrinologist could diagnose something like that. The outer part of the eyebrows are not thinning more than anywhere else. In fact, the inner eyebrow hairs are also falling out. ALL body hair seems to be thinning and falling out equally. It's a real hassle: it's getting into keyboards and mobile phones I use. It's covering desks I sit at. Beard hair is falling into food, and my pubic hair has almost all fallen out. This is not normal. I really want to know what the problem is. I can see no other symptoms, or nothing a western doctor would find important. I look quite young for my age (39), and I'm quite healthy. My excercise and diet are good.
    Anonymous 42,789 Replies
    • September 2, 2007
    • 07:38 AM
    • 0
    Flag this Response
  • Alopecia areata. Others associations: Pernicious anemia, myasthenia gravis, ulcerative colitis, lichen planus, and Candida endocrinopathy syndrome also have been associated with AA in some studies.
    rad-skw 1,605 Replies
    • September 3, 2007
    • 11:44 AM
    • 0
    Flag this Response
  • Thanks, rad-skw. I could be wrong, but I don't think it's alopecia of the areata kind. There doesn't seem to be a pattern to the hair loss - it isn't the size/shape of a coin or whatever. It's strange, because most health problems show up in routine blood tests. Something like anaemia, for example, would surely show. Wouldn't it? It's possible that there might be a tumor on some gland somewhere. Who knows? You'd think that if you had really abnormal symptoms something would show up somewhere.
    Anonymous 42,789 Replies
    • September 4, 2007
    • 04:36 AM
    • 0
    Flag this Response
  • Well, it's not alopecia totalis because you still have the hair on your head. A dermatologist can evaluate the hair that's fallen out, see what phase of the growth cycle it is in, and maybe make a diagnosis based on that. Hopefully.
    rad-skw 1,605 Replies
    • September 4, 2007
    • 06:21 AM
    • 0
    Flag this Response
  • Also, you have to test for the right things. Catch 22. You have to kind of guess what is wrong with you, before you can order the appropriate lab work.
    rad-skw 1,605 Replies
    • September 4, 2007
    • 06:22 AM
    • 0
    Flag this Response
  • Hi I have something slightly different then you, I have been shedding scalp hair due to extreme burning stinging of the scalp. I also noticed brows and lashes shedding and arm hair and such, but never to the point where it leaves me void of hair, nor can anyone else really notice it. One day brushed my arm and hairs started dropping out, but somehow its not apparent and no patches or circles. I think for me there is some hormonal componant going on here perhaps thyroid. Thyroid can cause thinning of body hair, and thinning of the outer corner of the eyebrow. Alopecia Areata is not always clear cut, not always patchy it can be sudden or diffuse. But if you have lost nothing off your head and just the body, you might ask your doctor about pituitary disorders, they are known to cause loss of pubic and also armpit hair, I dont know exaclty why but its part of a pit problem. Hope it slows down for you
    burninghead 37 Replies
    • September 5, 2007
    • 03:19 PM
    • 0
    Flag this Response
  • Thanks. I hope it slows down for you, too, burninghead. The scalp stinging sounds more fungal or bacterial to me, but I'm hardly an expert. I think a dermatologist is the next logical step. You're right, rad-skw, they have to know what to look for. The endocrinologist I saw even got me to do a glucose tolerance test, and this was way-off. Surely a couple of questions could have sorted that out. Then an appointment two months later and another test. Beard going, eyebrows starting to go, very frustrating, and nothing. In one sense this is very good for me to go through. I'm currently studying TCM and good diagnosis can be quite hard in this field. A lot of patients see TCM practitioners when the medical system has failed them, i.e, when they're in the same situation as me.
    Anonymous 42,789 Replies
    • September 6, 2007
    • 02:37 AM
    • 0
    Flag this Response
  • Thanks for the reply, Dxd. I read this info as well. It could be a thyroid problem, but SURELY an endocrinologist could diagnose something like that. The outer part of the eyebrows are not thinning more than anywhere else. In fact, the inner eyebrow hairs are also falling out. ALL body hair seems to be thinning and falling out equally. It's a real hassle: it's getting into keyboards and mobile phones I use. It's covering desks I sit at. Beard hair is falling into food, and my pubic hair has almost all fallen out. This is not normal. I really want to know what the problem is. I can see no other symptoms, or nothing a western doctor would find important. I look quite young for my age (39), and I'm quite healthy. My excercise and diet are good.An endocrinologist who is experienced in the field might be able to get it right. However, these days there are so many who miss the simpliest diagnoses. Sometimes one doesn't have a far out TSH result which truly indicates hypothyroidism and yet they have it and have it bad. Many factors make proper diagnosis difficult including some medications, nodules on the thyroid secreting thyroid hormone, etc.
    Anonymous 42,789 Replies
    • September 6, 2007
    • 08:56 AM
    • 0
    Flag this Response
  • Complications of Crohn’s Disease

    Recognize the risks associated with Crohn’s disease.

    8 Surprising Facts About Cholesterol

    Did you know that one in six US adults has high cholesterol?

  • Yes. Thanks, Dxd. I guess it's off to the dermatologist next. They cost a fortune, too.
    Anonymous 42,789 Replies
    • September 7, 2007
    • 08:07 AM
    • 0
    Flag this Response
  • Many of my docs now have Physician Assistants or Nurse Practicioners. I don't know if they are less expensive, but they are certainly quicker to get into see. This is in the US.
    rad-skw 1,605 Replies
    • September 7, 2007
    • 09:14 AM
    • 0
    Flag this Response
  • I was diagnosed with Hypothyroidism a few years back after feeling certain I was dying for well over a year. My count was 65 which is right off the charts. Normal should be no more than 3.0. It took a long time to get my levels back to normal and I never really felt like my old self again. I have pain and fatigue daily. My hair on my head is probably less than 50% of what I had. My body hair is basically gone. I have invisible colorless fuzz on my arms where I once had hair. I fear that soon I'll have to draw my dang eyebrows on! I believe I'm beginning menopause since I'm 48. I'm Italian-American so I was always typically hairy, even suffered from a unibrow.
    Anonymous 42,789 Replies
    • September 15, 2007
    • 10:41 PM
    • 0
    Flag this Response
  • I was diagnosed with Hypothyroidism a few years back after feeling certain I was dying for well over a year. My count was 65 which is right off the charts. Normal should be no more than 3.0. It took a long time to get my levels back to normal and I never really felt like my old self again. I have pain and fatigue daily. My hair on my head is probably less than 50% of what I had. My body hair is basically gone. I have invisible colorless fuzz on my arms where I once had hair. I fear that soon I'll have to draw my dang eyebrows on! I believe I'm beginning menopause since I'm 48. I'm Italian-American so I was always typically hairy, even suffered from a unibrow.Hi Hairless Mama,You may not be converting T4 into your needed T3. Also you may not be on the correct dose of thyroid replacement.I suffered from unibrow too. I can relate. When I had undiagnosed Hashi's my right eyebrow was missing all but the middle part of my eyebrow. It's starting to grow back now. I'm 54.Correct dosage is determined by taking your weight in kg and multiplying that by 1.6 mcg. For instance, if I weighed 156 pounds that's equal to about 71 kg. Multiplying that by 1.6 mcg I come up with a dose of 113.6. The closest dose to that would be 112 mcg. And if supplemented with 5 mcg of T3 you'd be close to the correct dose.You might also be suffering from something like sleep apnea, common as you approach menopause. That could cause continued hair loss and pain due to Fibromyalgia like symptoms. You can especially have those symptoms if you're being undertreated for hypothyroidism.Check out this website for mor information on correct dosing and TSH, T3, and T4 levels for hypothyroidism and Hashimoto's Thyroiditis.http://www.thyroidmanager.org/Written my endocrinologists for doctors treating their patients.http://medical-dictionary.thefreedictionary.com/This medical dictionary might be helpful for some terms on the thyroid website.
    Anonymous 42,789 Replies
    • September 17, 2007
    • 01:33 PM
    • 0
    Flag this Response
  • Look up hyperparathyroidism. It fits the age, the pain and fatigue you are having. Simple blood tests. Easy surgery to fix.
    rad-skw 1,605 Replies
    • September 19, 2007
    • 11:37 AM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.
Advertisement

8 Health Dangers of Depression

Unmanaged depression can take a toll on your physical health.

Best Cough & Cold Meds for Kids

Help your child feel better, faster.

What HIV Positive Women Should Know About Sex

You can have sex after an HIV diagnosis.

Food Choices for Diabetes

What, when and how much you eat affects your blood sugar.

6 Exercises for Multiple Sclerosis

Ease your way into these stretching and strengthening moves,

Advertisement