Discussions By Condition: I cannot get a diagnosis.

been sick for 72 days need help

Posted In: I cannot get a diagnosis. 10 Replies
  • Posted By: patch789
  • August 25, 2009
  • 06:55 PM

I have been sick for 72 days and no one knows what is wrong with me
it all started when I was playing tennis one day. I was playing and then boom out of nowhere I felt really weird like I I was going to faint and
was not really all there. it’s hard to describe. I also had brain fog like my head was in a fog. it was kind of like I was in a day dream.
I also got really shaky my hand were shaky and I felt nervous. my hands and feet got cold and sweaty(especially the feet) and it was hard to breathe.
it also was hard to like talk and move(as if your giving a speech type of feeling)
but then after 6 hours of rest it went away. 2 weeks later I was taking finals and then boom out of nowhere it hit me again.
I got through finals and went to sleep but when I woke up it was still there.
then 5 days later these things developed.
also I have photophobia and light bothers me and hurts my eyes. I can not go outside at all or all these symptoms get worse.
also I have anxiety somehow from this I get nervous when going to doctors and it is weird. I never had this happen. when I get nervous all these symptoms get worse
I pushed through finals and then told my parents 3 days later about it. we have been to all doctors and have no answers.
I have been tested for
30 different blood test
Lyme and mono and other viruses. tsh4 values and everything basically.

have been to
cardiologist
endo
ent

have taking
ct of head
ct of heart
ultra sound of kidneys
I went to a homeopathic doctor and he said it was adrenal fatigue and gave me stuff. it helped but just a little bit. I had a 24 hour saliva test done at sanesco labs and it showed lowcortisol in morning and 12-2 and high in evening.
I then researched and told my endo that I wanted hydrocortisone.
he put me on 5mg and gave me a acth stim test.
he said the result were fine, but I am not sure.
my results were 15.9 baseline and then 24.1 after 60 of the injection.
he said they were fine but I read they should of started at 20 and doubled.
the hydrocortisone has helped the most but I still can't go outside.
this week I am having a mri of brain and seeing neurologist.
every day it seems like I have gotten a little bit better but not much.
I am basically stuck in my house for 72 days now



someone please help.

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