Discussions By Condition: I cannot get a diagnosis.

Been having this problem about 4 years

Posted In: I cannot get a diagnosis. 11 Replies
  • Posted By: ntswood
  • June 6, 2008
  • 08:12 PM

About four years ago I was at the beach and had a breakout of hives. Seemed to be sun related so I stayed out of the sun and called my MD. She put me on prednizone. Things got better.

During the years, if not on prednizoe, I have a variety of symptoms. There is always a rash. Each time (after the clear up of induced by the prednizone) the rash is a little different. It started with major hives. Arms, trunk, legs, back. The next time, it looked like small, little chicken pox that had a liquid top. After you scratch off the liquid top, there were scabs. They did three biopsies of these bumps. Two at the University of Alabama and one at Johns Hopkins. Nothing showed positive.

Everytime I have this, there is major fatique. Major fatique. I can hardle make it to my car after work. When I get home every night, I got to bed and am asleep within an hour or so.

I've also noticed that my eyes are dry, have been for a couple of years. I can't see as well. It is like I have to move my head around to refocus. I had my eyes checked and my vision is fine.

The last time I came off the prednizone, I started having ear problems. They put me on three different antibiotics, no result. There was some fluid, but not enough for the discomfort I was feeling. Another thing that I have noticed, may be conincidence I am having more tooth problems than normal. I've had over the past two years is root canals, a cyst between the tooth and gum. I had to have the tooth pulled. Decay under a crown. I had to replace.

I've been off the prednizoe about a week and a half. I now have rash, just raise skin on my trunk. It itches horribly. The fatique is back. I'm sleeping about 12 hours at a minum a night and will not get out of bed, unless I have to go to work.

I love to quilt and don't have the enery to even do that! I just went to the doctor again and they drew about 8 tubes of blood. I haven't heard anything back from them. During the years, I've had an allergist, primary care, edocrinologist and dermatologist. My primary is scheduling me a visit with a Rhemotologist. Don't know what else to do. All they can say is that I have some type of auto-immune thing going on. They don't know what to do about it.

The only thing that makes this go away is prednizone. I have gained so much weight and my primary doesn't want me to use this drug again because it is so bad on my system.

Anyone had anything like this???

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