Discussions By Condition: I cannot get a diagnosis.


Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: latejuly
  • December 28, 2008
  • 07:15 PM

Hi - I've posted here before to no responses so I thought I'd try again. I'm a 23 year old girl.

I became very ill sometime ago I lost about 35 lbs, I would get bouts of diarrhea and extreme dry heaving (but never threw up). Sometimes I wake up at night in sweats and extremely nauseas. This has been happening for over 5 years.

It's been getting worse but the symptoms have gotten worse and varied. I never gained the weight back, I have trouble eating and can only eat a little bit each day. I feel so weak and dizzy that I black out or fall asleep for a very long periods.

My compliment levels are low and my B12 and RBC are up and down. I also get heart palpitations.

I've seen doctors they really don't know, its too extreme to be IBS and the symptoms are mostly related to my general body not just my bowels.

I get big puss like rashes on my legs. I have given up gluten and lactose to no help. its not celiac.

My mother and relatives have autoimmune (Addison's Disease) but my adrenal functions tests are normal. However I do have the HLA gene for autoimmune (HLA B27).

If it is autoimmune, they say its hard to diagnosis in early stages do I have to suffer for years and years until it gets worse enough to show on tests? or is it something else?

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