Discussions By Condition: I cannot get a diagnosis.

AT a Loss...

Posted In: I cannot get a diagnosis. 6 Replies
  • Posted By: Anonymous
  • April 30, 2008
  • 08:49 PM

For the past 5-6 months, I have been dealing with a string of symptoms and absolutely NO help from doctors. It began with a persistent nausea with vomitting and extreme fatigue. I was (and still am) experiencing sweats, tremors, bowel irregularities, random menstrual bleeding, flushing, palpitations, fingernail changes (no half-moon anymore and deep red lines with peeling at the tips) and weight loss. I have been trying to gain weight the past two months, only to find that I have lost another eight pounds. Initially, I guessed my thyroid may be the culprit based upon my symptoms and the fact that my mother had thyroid cancer precisely at my age (22). When tested back in December, my TSH was high (around 4.5) but my doctor's range for normal goes to 5.0 and he says this is the level which the machines are callibrated for and that 4.5 is not high. Is he right about this? I was quite upset when I left this doctor, as he told me that he was "unable" to help me any further, nothing was wrong and maybe counseling would help. What nerve! I'm pretty certain that I know when I am and am not sick, but anyways...Even so, I have been trying counseling for the heck of it...turns out I'm pretty healthy, mentally.

... I really have a strong intuition about my thyroid at this point.
On year ago, I went through a very similar experience with my gallbladder (the doctors even put labels on me back then including psychosomatic and hypochondriac, for which they have all since apologized). Currently, as far as bloodwork, I've had just about everything tested and come back negative. I have had MRI's, Pap smear, ultrasound, endoscopy (which revealed some gastritis and GERD), 24-hour urine sample...all "within normal range".
This whole process is making me feel crazy. I KNOW that there is something going on in my body...I know my body.

Has anyone had a similar experience? What can you say to doctors who won't listen? What should I do? I'm so exhausted by all of this, physically and mentally. I just want to feel OK, I do not enjoy going to the doctor or going through all of their tests. I am at a complete loss. HELP

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