Discussions By Condition: I cannot get a diagnosis.

"princess and the pea" syndrome

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: susiena
  • October 9, 2008
  • 08:48 AM

I facetiously call my problem "princess and the pea" although I'm hardly a princess. The problem is that about a dozen years ago my migraine headaches became so bad that my career was ruined, I went bankrupt, I became socially isolated, recreational activities were mostly too painful to participate in, and life lost its meaning. After being put on anti-seizure medicine, I was able to get a minimum-wage job. Along the way I gathered other illnesses including interstitial cystitis, idiopathic leg swelling that kept me from walking for a time, vertigo, nausea, dyspepsia, torticollis, restless leg syndrome, dystonia. I used to be a fun-loving, ambitious, hardworking person. Old friends were shocked when they saw this happen to me and I lost many friends because they could not accept the changes in me, which I could not control. I have a doctor who believes that I am really ill, not a head case, and does his best to make me comfortable, yet he admits that he's confused about the overall picture. MRIs, CTs, bloodwork, etc, come out normal. However something is wrong, and I am so frustrated. I'm 40 years old and have a lot of life ahead of me. I don't want to have to live it like this. I do exercise, eat well, drink lots of water, think as positively as I can, try to focus outside myself, focus on spirituality. At times it's very hard. Not knowing what's wrong means there's no path. Any suggestions would be much appreciated.

Reply Flag this Discussion

5 Replies:

Thanks! A moderator will review your post and it will be live within the next 24 hours.