Discussions By Condition: I cannot get a diagnosis.

Am I really a hypercondriac????

Posted In: I cannot get a diagnosis. 22 Replies
  • Posted By: Anonymous
  • May 28, 2008
  • 11:01 AM

:confused:Ok, I am 18. For the past 7 years I have had alot of problems and I am often called a hypercondriac and that nothing is wrong. My symptoms come and go, and sometimes there are new symptoms. Symptoms include: infections, extreme fatigue, weak, dizziness, headaches, join pain/muscle pain, unexplained fever and chills, rash on my face and arms, sensitivity to light, canker sores, throat sores, nausea, loss of appitite, depression/ anxiety, rapid heart beat, chest pain, swollen lymph glands, and i get sick really easy. I've been to several doctors and they tell me I'm just depressed. Exposure to the sun makes me weak and I get a rash that doesn't itch or hurt. I physically can't handle excersise. I'm tired of feeling sick. Am i really a hypercondriac? Can someone please help me? Does anyone know what this sounds like? I've given up on doctors..

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  • You are not a hypochondriac at all....my guess is that you have a very common problem and that is a thryoid problem. Does anyone else in your family have one? Thyroid problems sometimes run in families. BOth my sisters and I have them and it all started with my grandmother it seems.... You need some blood work to check. Ask your doctor for all these blood tests....he may insist on just the TSH blood work but you really should get them all for the best, most accurate account of what is going on.. The blood work you need are: TSH, FT4, FT3 and the antibodies for the autoimmune disease of the thryoid Graves Disease and Hashimotos Disease. It might sound bad or scary, but the majority of thryoid problems are very treatable under a good doctor's care. The specialist in this area is called an endocrinologist and if your GP does the test and it looks like you have a thryoid problem I would suggest you then see an endocrinologist if possible for treatment. Treatment can take a while, but you will recover your well-being. And look up Mary Shomon's sit on thryoid...great site, lots of info and a forum with a great group that can help you. Joan
    Joan5555 316 Replies Flag this Response
  • You are not a hyperchondric, Your symptoms match chronic fatigue immunity dysfunction syndrome (CFIDS) also called Chronic fatigue syndrome and sound quite classical. Thou it's medically recognised, unfortuantely most doctors are naive about this condition and often will say the patient is just depressed or even have hyperchondria (they just dont recognise CFIDS patients if they come across them). In CFIDS.. it is normal for the symptoms to be coming and going (and changing). Studies have shown that 90% of us (i have this condition too) are sick and undiagnosed. check out http://wwcoco.com/cfids/bernesx.html You need to find a doctor or specialist who specialises in this condition to tell you if you have it (and to rule out like conditions, if this isnt the case).. to do so..contact your local CFS support group and ask for doctor's recommendation. or there is list at http://www.co-cure.org/Good-Doc.htm beautiful online support forum for this condition at http://forum.notcrazy.net/ i suggest you join so you have have some emotional support with your symptoms and while trying to get a diagnoses.. it is common to end up with depression with this condition, due to others (including naive doctors) not believing you!! the sooner you get a proper diagnoses the better....
    taniaaust1 2,267 Replies Flag this Response
  • You should see an allergist/immunologist and have some blood tests.
    aquila 1,263 Replies Flag this Response
  • sounds like you've picked up a bad virus; you need a doctor who you are comfortable with...you could have childhood arthritis caused by the virus..
    Monsterlove 2,921 Replies Flag this Response
  • It looks that some persons on that forum don't believe or don't know lyme disease, that is the epidemic sickness in the world.You have same symptoms than me and i have lyme. I'm in Canada. Blaze and me try to help people with it not knowing and you are one. Please read about it and go on lyme net to find a doctor. Don't trust infectious disease doctors, they are lyer, it's a big story...Things will change soon...Tou are not hypocondriac, don't have chronqiue fatigue, and you have lyme ok.Do what you want with it!!Good luck and don't give up, go see a LLMD, and you will go trougt it!Fanny
    Fannou 111 Replies Flag this Response
  • Hi there. No, you're not a hypochondriac...far from it. Don't feel bad, I got hit with all kinds of stuff when I was a teen, too; 17, and now I'm 25, and I'm still fighting to get a diagnosis; believe me, I know how frustrating it is, and you sound like me with the doctors constantly blowing you off...they seem to have this mentality that if you are going through something when you're young, it doesn't exist; I can't tell you how many times I've gone to doctors to tell them what I'm going through, and they looked at me like I lost my mind, because just about every test came back normal; believe me, I'd love to just quit doctors too, so I know how you feel...but I can't give up, and I hope you don't either; there is something wrong, and you have to fight them to find out what it is...I know how hard it is, but you have to keep trying to find out what is going on. Some of your symptoms sound like mine, too; the only difference is my symptoms never go away, but since I've had my problems, I get sick very easy too, and I didn't before I got all of this, and I also get a lot of infections. When you get sick, does it stay longer than it should? Take care and good luck. And if you ever want to talk, here is my address: jamie2653@yahoo.com
    Anonymous 42,789 Replies Flag this Response
  • You're not a hypochondriac. I’m 27 now and I had unexplained symptoms for years (many very similar to yours) and both my family and doctors told me there was nothing wrong with me. One even told me my symptoms were in my head and tried to send me to a psychologist! I can't tell what's wrong with you, but you need to demand visits to specialists (stick to ones close to big cities). Go to an immunologist, rhymetalogist. Get tested for thyroid malfunction, chronic fatigue, chronic inflammation, and Lyme disease. Keep a running log of your symptoms, where and when. And if one specialist doesn't give you the answers you need, go to another one. So what was wrong with me? Turns out my inflammation levels were abnormally high. Inflammation is necessary when you are sick or hurt. Your body kills off the damaged cells and makes new ones. Chronic inflammation is just the opposite. Your body attacks itself and kills healthy cells. Chronic inflammation can make you feel extremely tired, achy, depressed, dizzy, and it lowers your immune system – so you get sick more often and longer than other people. I was also sensitive to light, noise, plus constant headaches & sore throats. What’s more, any kind of stress - emotional, mental or physical (including exercise) causes your body to think it’s under attack and jacks up the inflammation response. If you notice you have more pain, illness or tiredness after stress, you could have the same condition. They don’t know WHY I have chronic inflammation, but I’ve been on an anti-inflammatory drug called Hydroxychloroquine (full dose – 400mg a day) for 8 months now and the change has been amazing. I feel like I’ve gotten my life back. It’s likely autoimmune. When you go to the immunologist, ask for the full range of inflammatory tests. They missed my condition for so long because they were looking for specific autoimmune indictors (which I don’t have) in my body that normally cause inflammation. But isolate one test and its clear my inflammation levels were through the roof. Try it. PS. My rash looked like little droplets of blood. Does yours? If so, tiny blood vessels are breaking under the skin. Don’t ask me why. If you have any questions, you can email me at snowtigress12@yahoo.com. ~ Amy
    Anonymous 42,789 Replies Flag this Response
  • once i thought i had a bone in my elbow, and ever since ive been called a hypercondriac is this true
    Anonymous 42,789 Replies
    • December 3, 2009
    • 08:27 PM
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  • you need to see the episode of doctor oz that was on today!!!!! dec 3rd 2009,,, there is a test! and something new thety have just figured out that goes along with cfs,,,, you are not crazy, just get your doc to listen to ya,,, good luck
    Anonymous 42,789 Replies
    • December 3, 2009
    • 10:16 PM
    • 0
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  • :confused:Ok, I am 18. For the past 7 years I have had alot of problems and I am often called a hypercondriac and that nothing is wrong. My symptoms come and go, and sometimes there are new symptoms. Symptoms include: infections, extreme fatigue, weak, dizziness, headaches, join pain/muscle pain, unexplained fever and chills, rash on my face and arms, sensitivity to light, canker sores, throat sores, nausea, loss of appitite, depression/ anxiety, rapid heart beat, chest pain, swollen lymph glands, and i get sick really easy. I've been to several doctors and they tell me I'm just depressed. Exposure to the sun makes me weak and I get a rash that doesn't itch or hurt. I physically can't handle excersise. I'm tired of feeling sick. Am i really a hypercondriac? Can someone please help me? Does anyone know what this sounds like? I've given up on doctors..WOW everything you said i feel the EXACT SAME WAY!!!!! i dont know wat 2 do
    Anonymous 42,789 Replies
    • February 3, 2010
    • 05:09 AM
    • 0
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  • No, you're not a hypochondriac. I suffered for 21 years with symptoms like yours before I was finally diagnosed with a very rare, very severe, immune disease. They kept doing tests of my immune system that came back 'normal' and dismissing me because they did not know that some immune diseases can be present even when your blood tests come back fine. Over the years I was accused of being a drug seeker, called a hypochondriac, and told I had Munchausen syndrome (a mental illness where a person makes up symptoms to get attention and sympathy).I think you should go to www.primaryimmune.org, the webpage for the Immune Deficiency Foundation, and read up on some of the symptoms to see if they sound like you. If they do you can download a Clinical Diagnosis booklet for your doctor that describes all the tests that need to be done to rule out an immune disease, or you can have your doc take advantage of their FREE consulting service where an IDF immunologist consults with your doctor on your case.Good luck and keep us posted,E
    ErinBBC 17 Replies
    • February 8, 2010
    • 11:45 PM
    • 0
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  • My daughter has all your symptoms and has been sick for the last three years. She started out with a virus and had little sores under her tongue. She gets apathous ulcers in her mouth so she spent an entire year with a gastro dr. All the tests were negative, meanwhile her c reactive protein was always elevated and her sedimentation rate was always elevated. All other bloodwork negative. Meanwhile all the symptoms especially joint and muscle pain was a problem. Then the headaches came!! I went to LIJ hospital and three drs there told me that my concern that my daughter had lyme was "low on the differential" and I should go see a neurologist. The rheumatologist told me she was not going to take any risks to help me. Well I found a lyme dr. and in fact, my daughter has a lyme co-infection called bartonella (just a different tick bacteria) and her lyme was not totally negative. She has been on doxycycline for a month and she is doing so much better. Joint pain is gone. Lyme is a very important subject that you need to research. Guidelines were rewritten in 2003 or 2006 that limit the treatment doctors are able to give a patient and the criteria a patient must meet to get a diagnosis. Specialists have the strictist guidelines, like the infectious disease dr. The subject is a political nightmare! There is a book that I found very informative by a woman, last name Bean. It just details the struggles she experienced trying to get well and the doctors along the way who were in denial. The best advice I ever got was from a dr. who told me I just haven't found the right doctor yet. You bet I told the rheumatologist at LIJ that bit of advice. So I moved on and now I feel I have finally found a doctor who is lyme literate. Good luck.:confused:Ok, I am 18. For the past 7 years I have had alot of problems and I am often called a hypercondriac and that nothing is wrong. My symptoms come and go, and sometimes there are new symptoms. Symptoms include: infections, extreme fatigue, weak, dizziness, headaches, join pain/muscle pain, unexplained fever and chills, rash on my face and arms, sensitivity to light, canker sores, throat sores, nausea, loss of appitite, depression/ anxiety, rapid heart beat, chest pain, swollen lymph glands, and i get sick really easy. I've been to several doctors and they tell me I'm just depressed. Exposure to the sun makes me weak and I get a rash that doesn't itch or hurt. I physically can't handle excersise. I'm tired of feeling sick. Am i really a hypercondriac? Can someone please help me? Does anyone know what this sounds like? I've given up on doctors..
    Anonymous 42,789 Replies
    • February 9, 2010
    • 10:50 PM
    • 0
    Flag this Response
  • Hi there. No, you're not a hypochondriac...far from it. Don't feel bad, I got hit with all kinds of stuff when I was a teen, too; 17, and now I'm 25, and I'm still fighting to get a diagnosis; believe me, I know how frustrating it is, and you sound like me with the doctors constantly blowing you off...they seem to have this mentality that if you are going through something when you're young, it doesn't exist; I can't tell you how many times I've gone to doctors to tell them what I'm going through, and they looked at me like I lost my mind, because just about every test came back normal; believe me, I'd love to just quit doctors too, so I know how you feel...but I can't give up, and I hope you don't either; there is something wrong, and you have to fight them to find out what it is...I know how hard it is, but you have to keep trying to find out what is going on. Some of your symptoms sound like mine, too; the only difference is my symptoms never go away, but since I've had my problems, I get sick very easy too, and I didn't before I got all of this, and I also get a lot of infections. When you get sick, does it stay longer than it should? Take care and good luck. And if you ever want to talk, here is my address: jamie2653@yahoo.comHi I too have been going through something similar to this. Back in 2008 I came down with Mono. Ever since then I have stayed sick.. I keep all sorts of infections, run fevers, every time I turn around I'm in the doctors office. Last year alone I had 2 bouts of Pneumonia, along with that H1N1 flu virus. I had to go to a allergist for some tests they found out that my antibodies were really low and I had to get a pneumonia vac. not to mention I found out that I now have asthma. I never had any of this when I was young. I feel as if I'm going crazy and I tell my husband all the time that maybe I'm a hypochondriac, or that maybe I'm depressed or have anxiety. So I know how you guys feel. Take care
    Anonymous 42,789 Replies
    • February 15, 2010
    • 06:19 PM
    • 0
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  • Hi I too have been going through something similar to this. Back in 2008 I came down with Mono. Ever since then I have stayed sick.. I keep all sorts of infections, run fevers, every time I turn around I'm in the doctors office. Last year alone I had 2 bouts of Pneumonia, along with that H1N1 flu virus. I had to go to a allergist for some tests they found out that my antibodies were really low and I had to get a pneumonia vac. not to mention I found out that I now have asthma. I never had any of this when I was young. I feel as if I'm going crazy and I tell my husband all the time that maybe I'm a hypochondriac, or that maybe I'm depressed or have anxiety. So I know how you guys feel. Take careIf your antibodies were low, what they SHOULD have done was give you a pneumonia vaccination then check your antibodies again a week later to determine how much of an antibody response you had, then use that to determine which immune deficiency disorder you have and figure out the appropriate treatment (usually IVIG infusions). This is what I had to do.If they just said your antibodies were low and gave you a pneumonia vaccine it sounds like they were confused about how to test for a primary immune deficiency and what to do if your antibodies were low. If you have low antibody response, the pneumonia vaccine won't do you any good as far as preventing pneumonia it's just given to you as a tool to help determine what level of deficiency you have.Since you have low antibodies you need to see an immunologist/infectious disease doctor ASAP. Go to www.primaryimmune.org (homepage of the Immune Deficiency Foundation) and you can learn about immune deficiencies and they can help you find a doctor. Or, your doctor can use their FREE consultation service where an IDF doctor will consult with yours and tell them the right way to do tests.
    ErinBBC 17 Replies
    • February 16, 2010
    • 03:38 AM
    • 0
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  • Fanny is correct. I am CDC positive for Lyme disease and all of those symptoms are symptoms of Lyme disease. Lyme is actually misdiagnosed as CFIDS quite often. This actually occurred to one of the patients in the book Cure Unknown. Their CFIDS was actually Lyme disease. I can tell you that every single one of those symptoms fall into a Lyme diagnosis and I can add a few more....ringing in the ears...burning pain behind your scapula, feet or hands or both getting hot and red and burning, etc. Exercise will completely wipe you out for days eventually. Until you get treated, you only get worse. I also have Bartonella and that is what I believe caused my lack of appetite. It also causes a lot of red dots on your skin which can look like cherry angiomas. However, these red dots will often grown much bigger than cherry angiomas and you will sometimes scratch it thinking it's a bump and realize you are now bleeding all over. They get big like moles and they even show up in your private areas. Cherry angiomas are normal as you age but if you are getting a lot of them in a very short amount of time, and they are larger than they should be, there is something going on.The Lyme bacteria can go anywhere in your body because it's a spirochete. It can drill into tissue anywhere. This is why it causes so many symptoms. It does not take long for it to penetrate the central nervous system or pass the blood brain barrier. This is why you show up with so many symptoms. It is a multi-systemic disease. There is only one lab that I know of that can properly test for Lyme disease and that is IgeneX. Labs can be negative 50% of the time through regular laboratories. IgeneX specializes in tick-borne illness. You call them, order the kit, take it to your doctor and ask them to draw the blood. The doctor has to sign the form and fill in his info. but you do not need his approval to do this test. If he refuses then you find a different doctor. You fill the rest out, and you follow the instructions to send it back to IgeneX.The only downside is that insurance will most likely not cover it. You will have to pay up front and submit their receipt to your insurance company and hope they cover. It's the best money I ever spent. Like the post above, I too am recovering. I did the doxycycline then was given amoxicillin, azithromycin and flagyl as well because doxy cannot cure all the coinfections nor can it break through the cyst formations of the Lyme bacteria. This is why additional antibiotics have to be used. I have been under treatment for two months now and I am at least 50% better. I will be on this treatment for 6 months to 3 years depending on how quickly my body responds, but I can tell you that I would rather do three years of this then to continue on the road I was headed. I was miserable! I wanted to die.
    Anonymous 42,789 Replies
    • February 16, 2010
    • 06:53 AM
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  • you need to see the episode of doctor oz that was on today!!!!! dec 3rd 2009,,, there is a test! and something new thety have just figured out that goes along with cfs,,,, you are not crazy, just get your doc to listen to ya,,, good luckThe rash on the face and sensitivity to the sun are symptoms of Lupus.
    Anonymous 42,789 Replies
    • February 17, 2010
    • 04:42 AM
    • 0
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  • :confused:Ok, I am 18. For the past 7 years I have had alot of problems and I am often called a hypercondriac and that nothing is wrong. My symptoms come and go, and sometimes there are new symptoms. Symptoms include: infections, extreme fatigue, weak, dizziness, headaches, join pain/muscle pain, unexplained fever and chills, rash on my face and arms, sensitivity to light, canker sores, throat sores, nausea, loss of appitite, depression/ anxiety, rapid heart beat, chest pain, swollen lymph glands, and i get sick really easy. I've been to several doctors and they tell me I'm just depressed. Exposure to the sun makes me weak and I get a rash that doesn't itch or hurt. I physically can't handle excersise. I'm tired of feeling sick. Am i really a hypercondriac? Can someone please help me? Does anyone know what this sounds like? I've given up on doctors..Have you ever been bitten by a tick or been tested for lupus?Jan
    Anonymous 42,789 Replies
    • February 18, 2010
    • 07:25 AM
    • 0
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  • :confused:Ok, I am 18. For the past 7 years I have had alot of problems and I am often called a hypercondriac and that nothing is wrong. My symptoms come and go, and sometimes there are new symptoms. Symptoms include: infections, extreme fatigue, weak, dizziness, headaches, join pain/muscle pain, unexplained fever and chills, rash on my face and arms, sensitivity to light, canker sores, throat sores, nausea, loss of appitite, depression/ anxiety, rapid heart beat, chest pain, swollen lymph glands, and i get sick really easy. I've been to several doctors and they tell me I'm just depressed. Exposure to the sun makes me weak and I get a rash that doesn't itch or hurt. I physically can't handle excersise. I'm tired of feeling sick. Am i really a hypercondriac? Can someone please help me? Does anyone know what this sounds like? I've given up on doctors..Hi my friend, just read ur post. I have suffered from chronic fatigue syndrome for 15 years now and have had all the symptoms that u have discribed. I saw a neurologist to get diagnosed and feel that it would be your best way forward. If you see one privatetly you will be seen sooner and then transfere to the NHS. Look up the M.E association on the internet. M.E. is another name for chronic fatigue. They can help you, speak to them on the phone they may be able to help you with getting diagnosed. Not all doctors are as nieve about this illness as they were in the past. However; there is no particular treatment and no cure, but at least you will know that you are not going mad. Stress makes the condiction worse. Good luck my friend. U take care Julie x
    Anonymous 42,789 Replies Flag this Response
  • :confused:Ok, I am 18. For the past 7 years I have had alot of problems and I am often called a hypercondriac and that nothing is wrong. My symptoms come and go, and sometimes there are new symptoms. Symptoms include: infections, extreme fatigue, weak, dizziness, headaches, join pain/muscle pain, unexplained fever and chills, rash on my face and arms, sensitivity to light, canker sores, throat sores, nausea, loss of appitite, depression/ anxiety, rapid heart beat, chest pain, swollen lymph glands, and i get sick really easy. I've been to several doctors and they tell me I'm just depressed. Exposure to the sun makes me weak and I get a rash that doesn't itch or hurt. I physically can't handle excersise. I'm tired of feeling sick. Am i really a hypercondriac? Can someone please help me? Does anyone know what this sounds like? I've given up on doctors..okay, yes this always happens to me !I am a hyercondriac
    Anonymous 42,789 Replies Flag this Response
  • WOW everything you said i feel the EXACT SAME WAY!!!!! i dont know wat 2 doFor: ''Am i really a hypercondriac????''My heart goes out to you, and all persons who've been ''down that road'' like myself...UM, NO, I would have to say , ''resounding no'', you are not just ''imagining symptoms'' which is hallmark-online-definition of hypochondria. WHO has time to go to the trouble of making this stuff up? And then finding a way to ''exhibit'' same symptoms? It would be a 'rare duck' who could, it would seem, to me.Thought #1.....According to pulic-available-online-information that i have read/reasearched, for myself, those symptoms are consistent with CFIDS, MYASTHENIA GRAVIS, and/or SOME of the ADRENAL FATIGUE symptoms. Also, All the aforementioned symptoms can be caused by lymes' disease, wich is the FASTEST GROWING/spreading disease on the planet today. Why docs don't tell you this, is unknown to me, as Lyme's is all over the world, and info about it online everywhere. There are very fine herbs, cat's claw, being one, and japanese knotweed, along with Andrographis paniculata that have killed lyme's spirochetes,for ppl. that i know who have it, along with co-infections. The antibiotics, doxycyclene and tetracycline also can do, but good luck getting tested, proving, then getting ''enough'' of the required medications for a long enough time. Lyme's spirochetes ''Borellia Burgdoferi is a master 'shapeshifter' and it is a ''stealth'' pathogen, and has multitudinous ways to hide/destroy and damage in a human or otherwise, body. It is easy to find online and/or 'prove' that lyme's is a spreading disease, with grave consequences to any system of the body. Neuro, cardiac, skin, brain, bone, ligaments, and immune systems. They ''infiltrate'' white blood cells and hijack them , leaving toxins everywhere, and 'drilling' thru tissue to live off our cells, wreaking havoc in their wake. I have read many many online blogs about ''auto-immune'' disease ending up beng lyme's.Thought #2........ Unless I detail all my symptoms, (and are willing to wait and see) as Western Medicine takes a ''wait and see '' approach, to wait for things that can be proven by 'testing', i ge no where. . except symptom treatment. Western Medicine is very regulated by insurance and legalities, to NOT suggest ''false'' or untested information. For some reason, in my case, i have noted that if i do not ''suggest'' something first, they seem reluctant to test for things. GEnerally speaking there is a tendency to push symptoms off on Psychiatry/Psychologic cause, if they have no hard science to prove what you have, as alot of illnness/conditions are considered ''psychosomatic'' or ..i.e. ''you smell bad fish, and you throw up'' type thing. I have had to wait until i've had serious sensory deficit, blood pressure dysregulation and organ involvment, and emergency room visit, to even get serious consideration. However, asking for Doctors' ''notes'' and test results and researching those online has tended to keep most of my doctors on their toes.. VERY much..though, i've noted some 'lost papers'' or ''we can't find that , we don't have that'' too. ( i've had 3 GPS, 1 chiropractor, 4 different neurologist visits, muscle tests, and loads of MRI'S so far, along w/ ''rush clinic exams'') It is your RIGHT to have RESULTS of tests and Dr. notes and summaries, by the way. If i can't get them from one doc, i'll try the hospital, or the administrator.Thought #3........... All the symptoms you describe are detailed online if you can come by the correct search words. It takes a lot of searching, becuz docs have their own language, like police. I have listened ''hard'' to get key words at my Dr. visits, researched most all of what you have mentioned at one time or another, to help my self 'try' to get back to some sort of health. People don't have to be 'imagining things' to want good health. Thought #4................... It is my experience that western medicine will ''separate'' systems being attacked and give it a name, (not knowing what causes it, and admitting to that) then treating the symptoms. Wich is all fine and dandy, until the medicine has a detrimental side effect, such as in my case. . or the disease progresses and incapacitates ..due to not treating the ''cause''. This is just my experience, and i understand it is not everyone's experience. But for what it's worth, i hope it helps in some small way, at least.
    Anonymous 42,789 Replies Flag this Response
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