Discussions By Condition: I cannot get a diagnosis.

Am I going mad?

Posted In: I cannot get a diagnosis. 12 Replies
  • Posted By: Anonymous
  • February 12, 2008
  • 09:38 PM

Hi all, first of all I'd like to say thanks for taking the time to read this, any advice or suggestions will be greatly appreciated as I feel like I'm going mad!

Long story short: about 20 months ago I got a really bad case of tonsillitis - I have suffered with throat problems my whole life and I'm currently waiting to see a specialist. Anyways I got this bout of tonsillitis during my final year of uni right around exam time so I did not have time to recover - I then graduated and started working full time (more or less).

Since this episode of tonsillitis I have been feeling very lethargic, I have no energy and all I want to do is sleep. I went to see my GP about this and they did some tests and it turned out that the tonsillitis was in fact glandular fever and that as a result I had Chronic Fatigue. I took about two weeks off and went back to work, made some changes to my diet and exercised more to get some endorphins flowing.

Since then however things have just gotten worse here is a list of my symptoms:

** Alternating constipation and diarrhea/v loose stole: (for approx 18 months, ongoing)
** Feeling dizzy and sometimes fainting: (for approx 18 months, fainted maybe 4 times in that period but not fainted for at least 4 months)
** My hands get a funny rash and they swell up and become hot: (this has happened approx 8 times in the last 15 months, ongoing)
** Very swollen glands in my neck, literally poking out of my skin the size of a cherry tomato (18 months about once every 3 weeks usually lasting 4-7 days, ongoing)
** Always feel tired and lethargic and that I have no energy.

Since the end of December things have got a little worse, basically when I wake up I feel very very nauseous like someone is stirring up my tummy and the nausea last till about 3pm then starts back up around 9pm, sometimes I am sick but not often. I am eating normally but don't feel at all hungry, I have to remind myself to eat almost.

Along with this I have abdominal pain - it feels like the sort of pain you get when you hold your urine in too long, and last for between about 5 and 20 minutes. Sometimes if I move to quickly it's more of a stabbing pain. I also have a pain in my chest to the left under my breast now and again, maybe twice this month, which gets worse if I breathe in deeply.

I also have a very very weird pain in my left side of collar bone and around my rib cage both front and back and sometimes in my wrists - it feels like the actual bone is swollen and it hurts a lot! If you look at my tummy when I lie flat you can even see sometimes that the one side is more swollen than the other. Also my tummy is very bloated, swollen and very hard to touch, almost like a pregnant lady and there is a sort of "sill"(like a definite ending of the stomach?!) to my tummy about 2 inches under my breasts. But no change in gas/stool.

I have also become very pale and sometimes my hands, arms and legs start to shake this has happened about once a fortnight over the last 2 months.

I have been to the GP and he says that I have a gastroenteritis and that it's just taking a long time to clear. But I do not think this could be right? The doctor has not looked at my tummy at all, I have not had any blood/urine tests. I have had a stool test which came back normal. Also I do not know if it is relevant but my skin has also become quite spotty (usually is very clear), and last month my period was very very light. Home pregnancy test is negative and no sexual intercourse for approx 4 months.

I'm female, 24 and have a healthy diet; I think I am classed as overweight - I'm 5ft3 and weigh 11 stone. I do not feel stressed/have a stressful lifestyle, I am not depressed - I generally feel happy. There is a family history of (breast & colon) cancer, diabetes, Thalassemia, Thrombocytopenia, Hodgkins and my dad has problems absorbing B12 - I forget what it's called.

Any help is greatly appreciated as the Dr does not seem to be taking me seriously - I'm convinced he thinks I'm a hypochondriac! I feel like I'm slowly going mad and this is having an adverse effect in my day to day life!

Sorry this is so long but I thought it would be best to be accurate - thank you all for taking the time to read this, it is greatly appreciated.


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