Discussions By Condition: I cannot get a diagnosis.

A pandoras box of symptoms...

Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: Anonymous
  • May 26, 2009
  • 08:55 PM

First off let me just say that not one Doctor I have come across has looked at my symptoms as a whole and I am incredibly frustrated by that, as I am starting to believe that all these symptoms are connected.
While I was pregnant with my 2nd daughter I began flushing in the face but it would come and go and I did not think too much of it. thought it was a pregnancy thing. after about 5 months postpartum the flushing became permanent and my face was always red. I went to a dermatologist and was diagnosed with roseaca. At around the same time I started becoming nasueas and had painful heartburn constantly as well as chronically fatigued. The only thing that would stop the heartburn would be to drink apple cider vinegar or lemon juice. My Dr did a TSH and checked my iron and all was good. I asked her to run some further tests to see if my flushing was anything more serious and an ANA of 1:10 came back with a speckled pattern. I was sent to a rheumatologist and then told I looked good so not to worry. things seem to be fine except the fatigue and the now chronic sinus infections. I get pregnant again 3 years later and the flushing begins again. About 3 months postpartum my milk supply disappears, incredible upper back pain in the middle of my back and serious fatigue. The back pain is apparently heartburn and seems to settle down after I end up in ER and take ulcer medication. 5 months postpartum and I start sweating profusely and it smells different to me.I notice large lump on my chest and dr says it is calcium deposit. 7 months postpartum and I start having night sweats and losing weight. At 10 months postpartum I notice 2 small, soft swollen lymph nodes on the lower left cervical chain, one is pea size and the other is oblong and about 2 fingers wide. The dr gives me xray and CBC for night sweats. nothing comes back and she says lymph nodes are normal and probably allergies. I have now noticed my sense of smell and taste are different. sweet is too sweet and salty too salty...and the smells of cooking are awful. I can only eat half of my normal plate of food before becoming painfully full and drinks fill me up. I continue to flush but mostly around ovulation and IPL laser therapy helps with that. Now at 12 months postpartum I have noticed another swollen node on my right side of the cervical chain but mid neck and one on the bottom of my collarbone. Both are pea size. when I lay down, I now notice the right side of my ribcage is higher than the other side and it is painful and feels heavy there. Around christmas I was having heart palpitations that I was told were very normal if not a little distressing.
I have lost 30 pounds in 9 months with no dieting or exercise.I have random, intermittent intense itching on my legs and inside my ears that wakes me up and I scratch until my skin bleeds. I am tired all the time. I feel like this is all connected and I am fighting something. I have gone to my Dr several times but I feel like I am getting no where cause the x ray and cbc came back normal. I live in canada and cannot go to a specialist without a referral though I wouldnt know who to go to anyway. I am too young to feel this awful. Any Dr's that could offer advice? I have not had a night sweats for a couple of weeks, those are pretty random as well.
any help from a Dr, or any kind of help is appreciated. I have seen a few Dr's and noone is concerned and everyone treats me for the specific reason I am there. Am I crazy and are all these symptoms random or should I be more concerned and fight for more testing?

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