Discussions By Condition: I cannot get a diagnosis.

5 months and counting..no diagnosis

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Anonymous
  • May 28, 2008
  • 06:19 AM

I got the lap band surgery in November of 2007
Jan 9 I got my first saline fill
Jan 14 i left work in an ambulance have seizure type episodes
the episodes do not show up on an eeg
i have been misdiagnosed with torticolis, epeilepsy, dystonia
no doctor can tell me whats wrong
the spells come out of the blue
throw me back draw up my left arm i clinch my teeth, grunt and turn my neck to the right and ***k
it feels like a constant charlie hors all over my body
i have been prescribed lamictal a seizure medicane, and on average i have 3 spells a day
without meds it is every 3 minutes
i have had almost eery test done, gone to rare disease specialist because they thought i have dystonia, no one can tell me whats wrong, i hurt so bad, and i want my life back!!!

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