Discussions By Condition: I cannot get a diagnosis.

2 years - no answers - only 32 yrs old

Posted In: I cannot get a diagnosis. 26 Replies
  • Posted By: makitels pea
  • January 21, 2009
  • 09:36 PM

I am a 32 year old female, no children. I don't know if anyone can help me or not.....at this point I feel that the the problem will be found after it is already too late....I HATE the way I feel and all I want to do is live a normal life! I am afraid to have children, go on vacation or do anything that may be "too much" for my body.

When I have what I call an "episode" -- my face gets flush, I feel hot, I get dizzy, sweat, vision gets blurry, eyes actually shift to the right and back to center, my speech is slurred. Occasionally I have a "tight" feeling in my throat. Occasionally my nose or lips will become numb/tingling.

"Episodes" are more frequent just prior to, during and after my period.

The beginning --April 2007 -- Driving to work I became severly dizzy -- I had to pull over, the severity was making me sick to my stomach. I was out of work for 3 WEEKS with this. After several series of tests, a visit to an ENMT & neurologist many things were ruled out. My neurologist sent me to a cardiologist. Over the course of testing I learned how to make my symptoms less severe by remaining calm. I had a positive tilt table test -- I did not pass out but my bp dropped very, very low, I was extremely hot, blurred vision, slurred speech and I had seizure like tremors/shaking after they brought the table down. I was prescribed Florinef in November of 2007 and wore several types of heart monitors over the next several months. My normal blood pressure is 100/70, low. Florinef was prescribed to increase my bp.

Cardiologist thinks I may have an arrythmia but could not catch it on the external monitors.

April 2008 -- I have an Electrophysiology test done -- filament in the groin into the heart -- everything was normal... Cardiologist implanted a loop recorder. Every month the recorder is downloaded -- I make recordings and it does it makes them on it's own. Thus far -- everything is "normal".
Immediately following EP test I got a cyst on my inner thigh that was very very painful. In May 2008 I got a kidney infection, no symptoms until I urinated blood. In June 2008 I caught hand, foot and mouth disease from a 2 1/2 year old that lives with us. My doctor first diagnosed it as strep until blisters formed on my hands & feet. My feet felt like I was walking on glass.

Cardiologist just reduced my Florinef. I had an episode 2 weeks ago, today my throat is "tight" and my sternum area feels the same.

can anyone help me?

Reply Flag this Discussion

26 Replies:

Thanks! A moderator will review your post and it will be live within the next 24 hours.