Discussions By Condition: I cannot get a diagnosis.

2 years and still waiting

Posted In: I cannot get a diagnosis. 8 Replies
  • Posted By: DMBordel
  • May 22, 2007
  • 02:55 AM

I have seen many doctors and they have said many things ... but I know there is something someone isn't getting. I do have very mild COPD and severe asthma. I use nebulizer treatments twice a day.
Symptoms:
*cold, clammy, red face - often asked if i have a bad sunburn - sometimes extends down neck and upper back
*profuse sweating everywhere but face mainly
*always hot - must wear my hair up can't handle the heat on the back of neck
*excessive yawning - people comment A LOT about it - even if i am not sleepy
*extreme fatigue - close to having to resign my job - don't know how to explain except to say that at times the fatigue is bad it feels as if my individual muscles are tired
*i will be sitting still - not getting up or moving around and start seeing stars
*IBS - for 16 years - new symptom is bloating for the last 3 months
*chronic back pain - surgery in 2001 - take percocet 10/325 and soma three times a day (and yes i have tried stopping them for a period of 4 weeks and it did nothing back make my life unbearable - no symptom relief just found out that i hurt in MANY places i didn't know was hurting)
*currently having my left ear/sinus checked out because the ear isn't draining - i think this is seperate issue
*blurred vision at times but can't find a pattern
*have to self cath at times because my bladder won't work
*difficulty concentrating and recalling common things that i should be able to w/out a problem like a co-workers name that i see daily - or odd things like forgetting how to spell a common word
*others meds - estratest (hormone dependent since 25), cingulair, cymbalta
I could sadly keep typing but general history:
-double mastectomy with tram-flap reconstruction with complications first surgery december 2002 and last surgery july 2007
-rectal reconstruction may 2006 - after this surgery is when symptoms started
-pneumonia 2/06, 6/06, 10/06 (missed three months of work)
-discectomy on back 9/2001
-right shoulder repair 1999
-rectocelle repair and gallbladder removal 1996
-bladder reconstruction 1994
-total hysterectomy and appendectomy 1992

I am VERY tired of surgeries!!! Right now I just want to know why I always feel bad ... tired ... fatigued ... ache like I have the flu ... different joints hurt at different times.

If anyone knows anywhere I can go to get help ... I am VERY much open! I am feeling hopeless.

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