My name is terri and I was born with femoral anteversion which was in both hips. Unfortunately I was one of the rare cases that did not correct itself and had to have three operations to correct it with pins and plates I think the operation was called femoral derotation osteotomy. The third operation was to take out the pins and plates in both hips. Before I had the operations I developed perthes disease that wasnt diagnosed until it had nearly healed up, the consultant I had at that time refused to believe it was perthes until I got a new consultant who diagnosed it.
I had my last operation when I was 13 I am now 22 years old. I was told I had made a full recovery and that was that. Until 4 years ago... I started to get pain a shooting pain in my right hip and right buttock which then started to go to the left leg and buttock. I can't walk that far maybe 5 to 10 minutes until the pain flares up and it then makes walking very painful. It has gotten worse over the four years, I visited lots of doctors who said it was 'in my head', 'live with the pain' and that it is 'muscle spasms' I know the difference between muscle spasms and the pain and this is not muscle spasms. I eventually found a doctor who referred me to the hospital and the consultant sent me for an MRI which I had today.
I found the MRI quite painful, especially when they took scans of both my hips, I could not walk out of the hospital and also had to be helped by two nurses, because the pain was so bad, I was crying.
Over the last year or so my symptoms of the pain is painful groin even to touch it hurts especially the right hip (it has always been the 'worst' hip.) Buttock pain in both buttocks, shooting pain from my hips and pain in my knees (could be referred pain.)
Has anyone else experienced this pain before? I am feeling old before my time and want to do things that my friends can do and not think about the consequences afterwards or how much rest I will need etc... I have visited casualty so many times when the pain is bad and I can't sleep. Does anyone have any advice? Thankyou